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At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so th... Read more
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease patients find a diagnosis, treatment, and pathway to a cure. Through personalized research projects, RGI provides access to world leading medical institutions and scientists to conduct genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an online crowd-funding platform to deliver financial solutions. RGI also supports rare disease advocacy by fostering an online community of rare disease patients and supporting rare disease research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8 unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare disease, and developed an online community with over 10,000 rare disease members. Through volunteers, RGI is able to slowly push science and health care forward to meet the needs of patients affected by rare diseases. To learn more about RGI check out our website, like us on Facebook, and follow us on Twitter!
I have been volunteering with RG for last one year. Working in HR team of RG has been great experience. All team members are knowledgeable and fun people to work with. Its been great opportunity to earn valuable experience.
I have been volunteering at Rare Genomics for more than 2 months. It has been a pleasant experience so far. My supervisors are very knowledgeable, helpful and supportive. It's a good place to work with professional and intelligent people who are passionate about making an impact on the lives of rare disease patients.
RG has a great mission to help people with rare diseases find hope for a cure. I expressed interest through VolunteerMatch and then had two interviews and a reference check before I was cleared to begin volunteering. It has been about 6 months and I have thoroughly enjoyed my experience.