Rare Genomics Institute

Cause Area

Advocacy & Human Rights
Children & Youth
Community
Health & Medicine
People with Disabilities

Location

8504 Firestone Blvd.#198Downey, CA 90241 United States

Website:

http://raregenomics.org

Are You an
Organization Admin?

Website:
http://raregenomics.org

Copywriter

Flexible Schedule | Virtual Opportunity

Contribute to your community while using your professional expertise, and work with talented peers in a rewarding, volunteer-based environment! The Rare Genomics Institute (RG) is a nonprofit organization dedicated to helping rare disease patients find hope for a cure. The Copywriter will write marketing and promotional copy for print and digital media: including advertising, direct marketing, flyers and brochures, e-mails, and social media posts. This volunteer position will also write and edit feature stories, edit and review copy to meet brand standards and tone-of-voice guidelines, manage content calendar across multiple channels, and collaborate with in-house design team to develop concepts and campaigns. Responsibilities: Plays a key role in content development across all media, including digital and print deliverables. Collaborates with graphic design team on campaign concept development Works closely with department and division members and coordinates deliverables with project managers. Presents copy to teams and internal clients for approval, negotiates changes, and corrects and revises copy until approved. Serves as copy editor for copy submissions from other internal departments Proofreads print and digital deliverables. Qualifications: BA/BS in marketing, communications, public relations or related field required. Experience, with relevant writing samples to demonstrate proficiency across multiple deliverables. Experience with developing content for social media. Corporate Relations Development experience

Date Posted: 2024-03-08
Social Media Content Creator

Flexible Schedule | Virtual Opportunity

Are you looking for an opportunity to discover personal and professional fulfillment, while aligning your career with your values? Rare Genomics Institute (RG) is an international non-profit founded in 2011 to provide access to cutting edge genomic research, technologies, physicians, and scientists across the globe. By providing an expert network, RG helps families pursue personalized research projects for diseases not otherwise studied. At RG, volunteers are given the opportunity to make a difference in the lives of people with rare diseases by engaging in advocacy, education, and providing philanthropic services such as pro bono genetic sequencing. We are seeking a creative, innovative, and passionate social media content coordinator with an interest in creating compelling social media content. This position will report to RG’s Social Media Senior Manager and will leverage our existing stakeholders, board members and supporters to increase brand awareness, improve marketing efforts, and increase our online social following. JOB RESPONSIBILITIES ● Draft and publish interesting, eye-catching social media content for RG’s Facebook, LinkedIn, and Twitter pages. ● Develop, implement, and manage a social media strategy to increase RG’s social media followers and online engagement. ● Work with content copywriters and the social media senior manager to ensure the content is informative, appropriate, and appealing. ● Collaborate with the Sponsorship & Giving Coordinator and Website Developments to boost donations to the organization through online fundraisers. ● Use social media content scheduling tools such as, Canva and Hootesuite, and graphic design tools such as, Piktochart, to create colorful and captivating social media graphics about rare diseases and RG’s philanthropy ● In partnership with the Senior Social Media Manager and VP of Marketing, this position will improve RG’s social media presence and outreach to expand its relationship with the world’s rare disease patients and families. EXPERIENCE NEEDED: ● Bachelor's degree in public relations, marketing, communication, management and/or a related field in human/social service; Applicant can be working towards completion of degree. ● Minimum of one year of social media experience for a company/organization, including but not limited to, social media marketing campaigns, social media content coordinator, social media platform managing, social media strategy for brand awareness and impressions, healthcare or non-profit fundraising, and/or digital media content coordination. ● Excellent knowledge of Facebook, Twitter, LinkedIn, and other social media best practices. ● Good understanding of social media KPIs ● Passion for helping families with rare diseases preferred

Date Posted: 2024-03-25

Organization Information

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.

Description

Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.

Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!

Reviews

by Cherelle M. (2022-07-28 16:22:36.0)

I gave 3 stars because RGI's cause is amazing however they are very unresponsive and coming from someone who was interested in volunteering, this was incredibly disappointing.

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by Ali R. (2018-05-21 11:45:12.0)

I have been volunteering with RG for last one year. Working in HR team of RG has been great experience. All team members are knowledgeable and fun people to work with. Its been great opportunity to earn valuable experience.

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by Rare Genomics I. from Hanover, MD (Administrator for this Organization) (2018-05-21 11:42:46.0)

Great opportunity to earn some experience and work from comfort of your home.

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by Anh K. (2018-05-17 13:23:53.0)

I have been volunteering at Rare Genomics for more than 2 months. It has been a pleasant experience so far. My supervisors are very knowledgeable, helpful and supportive. It's a good place to work with professional and intelligent people who are passionate about making an impact on the lives of rare disease patients.

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by Mark B. (2018-05-16 20:20:41.0)

RG has a great mission to help people with rare diseases find hope for a cure. I expressed interest through VolunteerMatch and then had two interviews and a reference check before I was cleared to begin volunteering. It has been about 6 months and I have thoroughly enjoyed my experience.

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by Yaasmance G. (2018-04-07 14:45:57.0)

They never reached out to me after I filled out the online application that they sent me via email. I was ready to work.

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