Flexible Schedule
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Virtual Opportunity
Information Technology(IT) Team Lead Do good for your community while using your professional expertise. Work with talented peers on a rewarding non-profit cause related program. Rare Genomics Institute is making a difference. Rare Genomics Institute is a non-profit organization that helps families in need of genome research. The IT Lead will oversee the management and execution of the organization's IT strategy, ensuring that systems, networks, and technology tools support operational efficiency and the overall mission. You will work closely with cross-functional teams to identify technological needs, ensure data security, and optimize our IT infrastructure. This role requires a mix of technical expertise, project management skills, and an understanding of the unique needs of a non-profit working in the healthcare sector. Qualification: Bachelor’s degree in Information Technology, Computer Science, or related field (or equivalent work experience). 5+ years of experience in IT management, with at least 2 years in a leadership role. Proven experience in IT infrastructure management, network administration, and cloud technologies. Strong understanding of cybersecurity principles and data privacy regulations (e.g., HIPAA, GDPR). Experience with non-profit organizations or in the healthcare/rare disease sectors is a plus. Strong problem-solving skills and the ability to manage multiple projects simultaneously. Excellent communication and interpersonal skills, with the ability to explain technical concepts to non-technical staff. Responsibilities: IT Strategy & Planning Develop and implement an IT strategy aligned with the organization’s goals, ensuring systems and infrastructure support mission-critical operations. Collaborate with leadership to identify current and future technology needs. Manage IT budgets and allocate resources effectively. Infrastructure Management Oversee the organization's IT infrastructure, including servers, networks, and cloud-based systems. Ensure all systems are maintained, updated, and secure, minimizing downtime. Lead the setup, configuration, and maintenance of hardware and software tools used by staff. Cybersecurity & Data Protection Implement security protocols to protect sensitive data, including patient information, donor data, and research findings. Ensure compliance with relevant privacy and data protection regulations (e.g., HIPAA, GDPR). Conduct regular security audits and provide training to staff on data security best practices. Technology Support & Training Provide day-to-day technical support for staff across various departments. Troubleshoot and resolve hardware, software, and network issues. Train staff on new technologies and software applications, ensuring they are empowered to use technology effectively in their roles. Project Management & Vendor Relations Lead IT-related projects from concept to completion, ensuring that all projects meet deadlines and stay within budget. Coordinate with external vendors and service providers for software, hardware, and technology consulting. Manage relationships with technology partners to ensure reliable service and negotiate contracts as necessary. Innovation & Continuous Improvement Stay up-to-date with emerging technologies and trends in healthcare, non-profit management, and IT. Propose and implement technological innovations that improve efficiency, streamline operations, and enhance service delivery for patients and families affected by rare diseases. Evaluate new software tools, IT systems, and technology solutions that can benefit the organization.
Date Posted: Apr 7, 2025
Flexible Schedule
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Virtual Opportunity
The Patient Advocate Associate (PAA) works as part of the Patient Advocacy Team (PAT) in Rare Genomics Institute (RG). A PAA RG is intimately involved with patients, walking incoming families through the process of obtaining genetic sequencing and research through RG and affiliates. Our PAAs are specially trained to provide individualized access and coordination of CLIA-certified Genetic Sequencing and research services and HIPAA- compliant patient data sharing consent. These families have been through so much already, and now you have the ability to directly help families and their children. While helping these rare disease families through RG is an extremely rewarding experience, the ability to promptly carry out responsibilities of the job is essential to ensure proper healthcare delivery. The work is completely virtual (via email), so you can easily adjust your work to your schedule. Expect at least about 5 hours a week. Responsibilities: * During your "on call" week respond to all incoming patient applications * Informational phone calls with RG families to explain how we help * Work with PAT to determine the right site for each family and proceed with patient sequencing and research navigation by coordination of services * Keep information in your Patient Dashboard tab up to date, especially the current status * BCC the PAT team on all of your email correspondence with RG families and colleagues * Be prompt with responses to patients and RG colleagues, at least within 3 days * During patient calls, try to be as understanding as possible. All families are different and some may be harder to work with than others * Keep the family and PAT updated throughout the whole process Qualifications: * Bachelor’s Degree or expected Graduation date for a Bachelor’s degree in a science or health related field * Well-organized and detail oriented; willing to take on additional responsibilities and challenges. * Exceptional communication skills * Experience or interest in the medical, research and non-profit field
Date Posted: Apr 9, 2025