• Rare Genomics Institute Rare Genomics Institute


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Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.

Rare diseases can affect any family at any time. It is not just some terrible disease that affects someone out there. It is a very cruel reality that can affect anyone, anywhere. Rare diseases have no boundaries, whether social, economic, or geographical. We at RGI understand the pain that rare disease patients and their families go through. And we care deeply about helping our patients. It's in our DNA.

While rare disease patients face similar challenges, each rare disease is unique in its own way. That's why we focus on the individual. Our funding model and results are centered on the patient. Donors are not giving to a mere cause, but to an actual individual. Patients receive information about their unique genetic sequence so that they can identify the specific treatment that is right for them. We start from the individual.

RG is committed to outstanding stewardship of donor funds and will not take for granted the trust of our patient families, who trust us act in their best interests. We aim for accountability and transparency in everything we do, whether it's in every dollar we raise and spend or in walking with our patients through the entire process from beginning to end.

Our mission is to help patients secure funding and obtain a genetic sequence of their disease. Our network of clinicians then help patients intrepret the results and make clinical decisions accordingly. Each patient funds for an end-product project that is well-defined, has a high chance of success, and will directly impact the patient. We guarantee a tangible result.


Want to be part of an exciting startup biotech helping children with rare diseases? Want to make an impact for the millions of children and adults that are living with rare disease? Rare Genomics Institute are helping those with rare genomic diseases get access to genomic sequencing and the latest biotechnology research that can help these people who literally have nowhere else to turn get closer to an answer that has been elusive for all of their lives. Come join us!

We have been featured in TED, Bloomberg, and Huffington Post, among others.

Check out our website, like us on Facebook, and follow us on Twitter!





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