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Rare Genomics Institute

Cause Area

  • Advocacy & Human Rights
  • Children & Youth
  • Community
  • Health & Medicine
  • People with Disabilities


8504 Firestone Blvd.#198Downey, CA 90241 United States

Organization Information

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.


Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.

Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!


Would you recommend Rare Genomics Institute?
6 reviews Write a review
by Cherelle M. (July 28, 2022)
I gave 3 stars because RGI's cause is amazing however they are very unresponsive and coming from someone who was interested in volunteering, this was incredibly disappointing.
by Ali R. (May 21, 2018)
I have been volunteering with RG for last one year. Working in HR team of RG has been great experience. All team members are knowledgeable and fun people to work with. Its been great opportunity to earn valuable experience.
by Rare Genomics I. from Hanover, MD (Administrator for this Organization) (May 21, 2018)
Great opportunity to earn some experience and work from comfort of your home.
by Anh K. (May 17, 2018)
I have been volunteering at Rare Genomics for more than 2 months. It has been a pleasant experience so far. My supervisors are very knowledgeable, helpful and supportive. It's a good place to work with professional and intelligent people who are passionate about making an impact on the lives of rare disease patients.
by Mark B. (May 16, 2018)
RG has a great mission to help people with rare diseases find hope for a cure. I expressed interest through VolunteerMatch and then had two interviews and a reference check before I was cleared to begin volunteering. It has been about 6 months and I have thoroughly enjoyed my experience.
by Yaasmance G. (April 7, 2018)
They never reached out to me after I filled out the online application that they sent me via email. I was ready to work.

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