During these uncertain times, how can we help?

As the world leader in volunteerism we feel a responsibility to unite our broader community, and to use this moment to become stronger.

See below to participate in our Impact Sector survey, access our COVID-19 Resource Hub, and explore our growing directory of COVID-19-specific and virtual volunteering opportunities.
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  • Rare Genomics Institute Rare Genomics Institute


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Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.


Want to be part of an exciting startup biotech helping children with rare diseases? Want to make an impact for the millions of children and adults that are living with rare disease? Rare Genomics Institute are helping those with rare genomic diseases get access to genomic sequencing and the latest biotechnology research that can help these people who literally have nowhere else to turn get closer to an answer that has been elusive for all of their lives. Come join us!

We have been featured in TED, Bloomberg, and Huffington Post, among others.

Check out our website, like us on Facebook, and follow us on Twitter!


Average Review 5 reviews

Would you recommend Rare Genomics Institute?

by Ali R. (May 21, 2018)
I have been volunteering with RG for last one year. Working in HR team of RG has been great experience. All team members are knowledgeable and fun people to work with. Its been great opportunity to earn valuable experience.
by Rare Genomics I. from Hanover, MD (Administrator for this Organization) (May 21, 2018)
Great opportunity to earn some experience and work from comfort of your home.
by Anh K. (May 17, 2018)
I have been volunteering at Rare Genomics for more than 2 months. It has been a pleasant experience so far. My supervisors are very knowledgeable, helpful and supportive. It's a good place to work with professional and intelligent people who are passionate about making an impact on the lives of rare disease patients.
by Mark B. (May 16, 2018)
RG has a great mission to help people with rare diseases find hope for a cure. I expressed interest through VolunteerMatch and then had two interviews and a reference check before I was cleared to begin volunteering. It has been about 6 months and I have thoroughly enjoyed my experience.
by Yaasmance G. (April 7, 2018)
They never reached out to me after I filled out the online application that they sent me via email. I was ready to work.