• A group opportunity. Invite your friends.
  • 2 people are interested
 

Silent Disco Songwriters Kick-Off Benefitting CF Foundation

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ORGANIZATION: Cystic Fibrosis Foundation

  • A group opportunity. Invite your friends.
  • 2 people are interested

Looking for volunteers who are able to support registration and other event general duties at the Silent Disco located in Jupiter, FL. For more questions, please contact msisom@cff.org.

1 More opportunity with Cystic Fibrosis Foundation

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About Cystic Fibrosis Foundation

Location:

3443 NW 55th Street, Bldg 1, Fort Lauderdale, FL 33309, US

Mission Statement

Until we end this disease, our team will work tirelessly to extend and enhance life for those with cystic fibrosis by functioning as:

  • Research pioneers, blazing new trails in drug development;
  • Fund-raisers, securing the money needed to support the fight against CF;
  • Advocates, keeping CF a top priority in government, industry and research;
  • Stewards, using your donations to help fuel the creation of new drugs;
  • Caregivers, linking patients and families to specialized CF care; and
  • Helping hands, offering support, information and resources.

Description

  • When the Foundation was established in 1955, children with CF rarely lived long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, many people with the disease can now expect to live into their 30s, 40s and beyond.
  • In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis -- a monumental breakthrough on the road to a cure.
  • The Foundation played an integral role in the development and FDA approval of five therapies that are now part of regular treatment regimens for many with CF. The Foundation has a robust pipeline of promising potential drugs that target the disease from every angle.
    In 2012, the FDA approved the groundbreaking drug Kalydeco, the first drug to treat the underlying cause of CF in a small group of people with the disease. The Foundation also is supporting research that may eventually treat the root cause of the disease in all people living with CF.

CAUSE AREAS

Advocacy & Human Rights
Community
Health & Medicine
Advocacy & Human Rights, Community, Health & Medicine

WHEN

Fri Feb 10, 2023
06:00 PM - 10:00 PM

WHERE

200 U.S. 1Rooftop at Harbourside PlaceJupiter, FL 33477

(26.93569,-80.08247)
 

SKILLS

GOOD FOR

  • People 55+
  • Group

REQUIREMENTS

  • Must be at least 18

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