Cystic Fibrosis FoundationCystic Fibrosis Foundation
Until we end this disease, our team will work tirelessly to extend and enhance life for those with cystic fibrosis by functioning as: Research pioneers, blazing new trails in drug development; Fund-raisers, securing the money needed to support the fi... Read more
When the Foundation was established in 1955, children with CF rarely lived long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, many people with the disease can now expect to live into their 30s, 40s and beyond.
In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis -- a monumental breakthrough on the road to a cure.
The Foundation played an integral role in the development and FDA approval of five therapies that are now part of regular treatment regimens for many with CF. The Foundation has a robust pipeline of promising potential drugs that target the disease from every angle. In 2012, the FDA approved the groundbreaking drug Kalydeco, the first drug to treat the underlying cause of CF in a small group of people with the disease. The Foundation also is supporting research that may eventually treat the root cause of the disease in all people living with CF.
I helped set up and organised all the tents and tables. I helped decorate all the stations. I also helped the people register themselves and give them the forms and the information. I helped filling and entering the forms into the file system they had. It was a very fun and interesting event that I helped make it better.