ORGANIZATION: E WE FOUNDATION
The Director of Programs will report to the CEO & President to develop, expand, and facilitate the foundation's programs. The Director of Programs will be responsible for the operational success of LEAP, ZEBRA, and STRIPE to ensure seamless team management and development, program delivery, and quality control and evaluation.
In this newly established role, the Director of Programs will manage any additional support individuals to ensure the programs are properly developed and executed. The Director of Programs will also be a key external face of the foundation in the community.
PO BOX 6391, HUNTSVILLE, AL 35813, US
Our mission is to support families affected by Edwards Syndrome, commonly known as Trisomy 18, while changing the medical perspective through efforts of advocacy, education, and public policy.
The E.WE Foundation is a 501c3 healthcare advocacy organization established in 2019 to provide resources and support to families affected by rare diseases like Edwards Syndrome, commonly known as Trisomy 18.
The E.WE Foundation currently offers three (3) resource and support programs: LEAP, ZEBRA, and STRIPE.
LEAP is a resource program promoting health literacy, community education, and patient advocacy.
ZEBRA is a comfort care & end-of-life solutions program that supports rare disease families living with life-limiting diagnoses, medical complexities and special health needs.
STRIPE is an economic assistance program designed to assist with the financial burden associated with caring for an individual with Trisomy 18.
This is a Virtual Opportunity with no fixed address.
July 23, 2022
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