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Seeking a Vibrant, People-First, Director of Programs

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ORGANIZATION: E WE FOUNDATION

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The Director of Programs will report to the CEO & President to develop, expand, and facilitate the foundation's programs. The Director of Programs will be responsible for the operational success of LEAP, ZEBRA, and STRIPE to ensure seamless team management and development, program delivery, and quality control and evaluation.

In this newly established role, the Director of Programs will manage any additional support individuals to ensure the programs are properly developed and executed. The Director of Programs will also be a key external face of the foundation in the community.

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About E WE FOUNDATION

Location:

PO BOX 6391, HUNTSVILLE, AL 35813, US

Mission Statement

Our mission is to support families affected by Edwards Syndrome, commonly known as Trisomy 18, while changing the medical perspective through efforts of advocacy, education, and public policy.

Description

The E.WE Foundation is a 501c3 healthcare advocacy organization established in 2019 to provide resources and support to families affected by rare diseases like Edwards Syndrome, commonly known as Trisomy 18.

The E.WE Foundation currently offers three (3) resource and support programs: LEAP, ZEBRA, and STRIPE.

LEAP is a resource program promoting health literacy, community education, and patient advocacy.

ZEBRA is a comfort care & end-of-life solutions program that supports rare disease families living with life-limiting diagnoses, medical complexities and special health needs.

STRIPE is an economic assistance program designed to assist with the financial burden associated with caring for an individual with Trisomy 18.

The E.WE Foundation is committed to ensuring all patient populations have equitable access to quality healthcare, resources, health & financial literacy and disease education.

CAUSE AREAS

Community
Education & Literacy
Health & Medicine
Community, Education & Literacy, Health & Medicine

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Public Relations
  • Advocacy
  • Professional Development
  • Community Outreach
  • Resource Development / Management
  • Special Needs

GOOD FOR

N/A

REQUIREMENTS

  • Orientation or Training
  • 20 hours per month
  • *Cross-cultural communication is a plus

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