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E WE FOUNDATION
Cause Area
- Advocacy & Human Rights
- Community
- Education & Literacy
- Health & Medicine
- People with Disabilities
Location
PO BOX 6391HUNTSVILLE, AL 35813 United StatesWebsite:
http://www.theewefoundation.org
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Organization Information
Mission Statement
To provide resources and support for families affected by Edwards Syndrome or Trisomy 18 and other rare diseases, while changing the medical perspective through advocacy, education, and public policy
Description
The E.WE Foundation is a 501c3 healthcare advocacy organization established in 2019 to provide resources and support to families affected by rare diseases like Edwards Syndrome or Trisomy 18.
The E.WE Foundation offers three (3) core programs: LEAP, ZEBRA, and STRIPE.
LEAP is a resource program promoting health literacy, community education, and patient advocacy.
ZEBRA is a comfort care program that promotes self care and mental health for families with rare diagnoses, medical complexities and special health needs.
STRIPE is an economic assistance program designed to assist with the financial burden associated with caring for an individual with Trisomy 18.
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(October 10, 2022)
A wonderful organization on a mission to genuinely helps the lives of others. They are growing fast. A great team environment with DEA woven into their fabric.