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HD Parity Act Advocacy Caucus

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Huntington's Disease Society of America, Greater Los Angeles Chapter


Want to be engaged with what legislators at the State and Federal level are doing and how we can influence them to improve the lives of families impacted by HD? Become a Member of our HD Advocacy Caucus!
FAQQ) What is the HD Advocacy Caucus? A) The Caucus is a way become involved at a higher level in HD advocacy initiatives like passing the HD Parity Act and increasing Long Term Care accessibility for HD Patients. You'll be a part of the beating heart of our grassroots advocacy work. Q)What is expected of me as a Caucus member? A) Caucus members will meet every other week to discuss progress in advocacy initiatives, Members of Congress to target for follow-up, engaging other community members in advocacy work, and next-steps on our Advocacy agenda. Q)What if I've never advocated before? Can I be a Caucus member? A) Yes! You need passion, time, and an interest in talking about Huntington's disease and its impact on you, your family and your loved ones. You need to be willing to talk to not only your Members of Congress and State Legislators about HD, but your friends, family and other community members as well!

2 More opportunities with Huntington's Disease Society of America, Greater Los Angeles Chapter

About Huntington's Disease Society of America, Greater Los Angeles Chapter


PO Box 4032, Santa Fe Springs, CA 90670, US

Mission Statement

Promote and support research to find a cure for HD (Huntington's Disease) Help people and families affected by the disease. Educate the public and health care professionals about HD.


The Greater Los Angeles Chapter of Huntington's Disease Society of America is dedicated to provide support and care of those who suffer from Huntington's Disease, their families, and the Huntington's Disease Community. We are committed to the eradication of this disease through education, advocacy, family services and research. The Greater Los Angeles Chapter (HDSA/LA) serves the ten county region surrounding Los Angeles. This service area spreads from Fresno in the north to Orange County in southern California.

Advocacy & Human Rights
Justice & Legal
People with Disabilities


We'll work with your schedule.


This is a Virtual Opportunity, with no fixed address.


  • Advocacy
  • Public Advocacy




  • Virtual meeting bi-weekly on Wednesday evenings, with calls scheduled from 6-7pm EST

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