Huntington's disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person's physical and mental abilities usually during their prime working years and has no cure. 41K Americans have HD, with 200,000+ living at risk, and 10% of all cases are children with Juvenile HD.
The Affiliate is recruiting board members for the Huntington's Disease Society of America (HDSA) - San Francisco Bay Area Affiliate, a local San Francisco nonprofit. The Affiliate is looking for energetic individuals with management skills to implement yearly strategic plan to heighten the awareness of Huntington's disease through fundraisers, developing relationships with local business, identifying potential local sponsors, outreach to educate healthcare professionals, staff for education days and support groups, grant writing, working on social media campaigns and developing a yearly budget.
The Huntington's Disease Society of America (HDSA) San Francisco Bay Area Affiliate is a nonprofit dedicated to improving the lives of everyone affected by Huntington's disease (HD) & Juvenile HD. HDSA is 90% volunteer based and San Francisco Bay Area Affiliates is run by volunteers.
The Affiliate Board/Team's goals are to:
Build an HD community-service organization.
Support HD research and communicate its impact.
Remove barriers to quality care.
Serve as the premier communicator of HD information.
Grow volunteer involvement.
Operate in a fiscally responsible manner.
Increase revenue to grow organizational capacity.
To accomplish these goals we need volunteers to help with running fundraisers, reaching out to potential sponsors, staffing for education days and support groups, grant writing, working on social media campaigns, and offering support to the Affiliate Board. When COVID-19 is not an issue, the Board will meet in-person at various locations in the San Francisco Bay Area so the request is the applicant live within the Bay Area.
About HUNTINGTON'S DISEASE SOCIETY OF AMERICA - San Francisco Bay Area Affiliate
P. O. Box 280, Vacaville, CA 95625, US
The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. The HDSA San Francisco Bay Area Affiliate provides support to the local Huntington's Disease (HD) community by hosting fundraisers, education days, outreach programs, HD clinics at Stanford University and University of California, San Francisco.
From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
Advocacy & Human Rights
We'll work with your schedule.
This is a Virtual Opportunity with no fixed address.
May 5, 2021
CSR / Volunteer Coordination
Driver's License Needed
Must be at least 18
Orientation or Training
The SF Bay Area Affiliate Board holds two in-person meetings and eight (8) zoom meetings a year. Board members are required to join a committee and adopt a Leadership role.
Board members should be based in and around the San Francisco Bay Area, and virtual/remote support for some functions of the Affiliate will be considered.