HUNTINGTON'S DISEASE SOCIETY OF AMERICA - San Francisco Bay Area Affiliate

Cause Area

Advocacy & Human Rights
Children & Youth
Community
Health & Medicine
People with Disabilities

Location

P. O. Box 280Vacaville, CA 95625 United States

Website:

http://www.hdsa.org/thwsanfrancisco

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Website:
http://www.hdsa.org/thwsanfrancisco

Active Opportunities (2)

Fundraising Committee Coordinator

Flexible Schedule | San Francisco, CA 94114

The HDSA San Francisco Bay Area Affiliate Fundraising Committee shall work to establish a fundraising plan that incorporates the HDSA San Francisco Bay Area Affiliate Agreement, Approved Budget, Performance Standards, and Plan of Work. The Committee shall work with existing event committees on ways to meet and exceed fundraising goals every year. The Committee is responsible for the involvement of all of the Affiliate Committee in fundraising activities (i.e.: securing sponsorship, local grants, etc.) and for monitoring all fundraising revenues and expenses. Skills for the position: -Manage fundraising events -Raise funds regularly meet or surpass fundraising targets -Research potential donors to gain insight into needs, beliefs and donation habits to understand how to position the SF Affiliate to them -Assist in brainstorming and creating new methods to raise funds for HDSA San Francisco Bay Area Affiliate -Work with Communications Committee to promote fundraising activity -Plan and coordinate event meant to raise funds and coordinate activities of volunteers -Work with HDSA staff partner to complete and orderly records of donors and manage regular donor communications -Build upon existing donor relationships and form new donor relationships on a regular basis -Collaborate with other organizations and groups within the community to build partnerships and enhance fundraising activities This is a volunteer position to start in January 1, 2022. Dollars raised funds Huntington's disease research, two (2) Center of Excellence at Stanford and UCSF Medical Center, three (3) local Huntington's disease support groups and local resources for Huntington's disease families. HDSA Affiliate has two annual events: 4th Annual San Jose Team Hope 10K Timed Run & 5K Walk is the 2nd biggest fundraiser for the nonprofit. Date of the event is June 18, 2022 & is held at Campbell Park in Campbell. Participants run/walk on Los Gatos Creek Trail. Record Timing times the runners. The largest fundraiser is the 16th Annual San Francisco Team Hope Walk on October 1, 2022 at Chrissy Field.

Date Posted: Oct 21, 2021
Board Member for the HDSA San Francisco Bay Area Affiliate

Flexible Schedule | Virtual Opportunity

Huntington's disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person's physical and mental abilities usually during their prime working years and has no cure. 41K Americans have HD, with 200,000+ living at risk, and 10% of all cases are children with Juvenile HD. The HDSA SF Bay Area Affiliate is recruiting board members for the Huntington's Disease Society of America (HDSA) - San Francisco Bay Area Affiliate, a local San Francisco nonprofit. The Affiliate is recruiting energetic individuals with management skills to implement yearly strategic plan to heighten the awareness of Huntington's disease through fundraisers, developing relationships with local business, identifying potential local sponsors, outreach to educate healthcare professionals, staff for education days and support groups, grant writing, working on social media campaigns and developing a yearly budget. The Huntington's Disease Society of America (HDSA) San Francisco Bay Area Affiliate is a nonprofit dedicated to improving the lives of everyone affected by Huntington's disease (HD) & Juvenile HD. HDSA is 90% volunteer based and San Francisco Bay Area Affiliate is managed by volunteers. The Affiliate Board/Team's goals are to: Build an HD community-service organization. Support HD research and communicate its impact. Remove barriers to quality care. Serve as the premier communicator of HD information. Grow volunteer involvement. Operate in a fiscally responsible manner. Increase revenue to grow organizational capacity. To accomplish these goals we need volunteers to help with running fundraisers, reaching out to potential sponsors, staffing for education days and support groups, grant writing, working on social media campaigns, and offering support to the Affiliate Board. When COVID-19 is not an issue, the Board will meet in-person at various locations in the San Francisco Bay Area so the request is the applicant live within the Bay Area.

Date Posted: Oct 21, 2021

Organization Information

Mission Statement

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. The HDSA San Francisco Bay Area Affiliate provides support to the local Huntington's Disease (HD) community by hosting fundraisers, education days, outreach programs, HD clinics at Stanford University and University of California, San Francisco.

Description

From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.

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HUNTINGTON'S DISEASE SOCIETY OF AMERICA - San Francisco Bay Area Affiliate

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