The Huntington's Disease Society of America (HDSA) San Francisco Bay Area is a nonprofit dedicated to improving the lives of everyone affected by Huntington's disease (HD) & Juvenile HD. HDSA has 55 Chapter & Affiliates across the U.S. HDSA is 90% volunteer based and all Chapters/Affiliates are run by volunteers. A HDSA Regional Development Manager locally assists Chapters/Affiliates.
The HDSA San Francisco Bay Area Affiliate began operation as of January 1, 2020.
The Affiliate Team's goals are to:
Build an HD community-service organization.
Support HD research and communicate its impact.
Remove barriers to quality care.
Serve as the premier communicator of HD information.
Grow volunteer involvement.
Operate in a fiscally responsible manner.
Increase revenue to grow organizational capacity.
To accomplish these goals we need volunteers to help with running fundraisers, reaching out to potential sponsors, staffing for education days and support groups, grant writing, working on social media campaigns, and offering support to the Affiliate Board.
About HUNTINGTON'S DISEASE SOCIETY OF AMERICA - San Francisco Bay Area Affiliate
P. O. Box 280, Vacaville, CA 95625, US
The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. The HDSA San Francisco Bay Area Affiliate provides support to the local Huntington's Disease (HD) community by hosting fundraisers, education days, outreach programs, HD clinics at Stanford University and University of California, San Francisco.
From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
Advocacy & Human Rights
Health & Medicine
We'll work with your schedule.
This is a Virtual Opportunity, with no fixed address.
November 17, 2020
Web Design / UX
Grant Writing / Research
Driver's License Needed
The SF Bay Area Affiliate Team holds two in-person meetings in the San Francisco Bay area (currently held remotely). We will schedule approximately 8 zoom meetings a year. When helping organize an event, there will be committee conference calls.
We are recruiting volunteers who want to help a local SF nonprofit in the fight to eradicate the cruelest disease on the planet. 41K Americans have HD and 10% of all cases are children with JHD.