Care Room helpers during rare disease family conference

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NBIA Disorders Association

  • 2 people are interested

During our biennial family conference we set up care rooms for individuals unable to sit through presentations by researchers and others on NBIA disorders. Those needing care are individuals with NBIA disorders, and younger family members.

We have arranged for activities, and nursing staff in the care rooms, but rely on community volunteers to assist with various things. Friday care room needs are 8:30 a.m. to 12:30 p.m., and 12:45 p.m. to 6:15 p.m., Saturday 8:00 a.m. to 12:15 p.m., and Sunday 8:45 a.m. to noon.

We are grateful for any time slot you can fill! Families are nearby and our coordinators will be able to contact them should the need arise.

More opportunities with NBIA Disorders Association

No additional volunteer opportunities at this time.

Children & Youth Health & Medicine People with Disabilities


Fri May 31, 2019 - Sun Jun 02, 2019
08:30 AM - 06:00 PM  


Embassy Suites by Hilton5055 International Blvd.conference centerN. Charleston, SC 29418




  • People 55+


  • Must be at least 16
  • At least one shift Fri 8:30 a.m. - 12:30 p.m., 12:45 - 6:15 p.m., Sat 8:00 a.m. - 12:15 p.m., Sun 8:45 a.m. - noon.

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