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Volunteers needed for Angelman Syndrome Charity Walk

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ORGANIZATION: Los Angeles Angelman Syndrome Walk

  • 22 people are interested
Los Angeles Angelman Syndrome Walk 2013

The Los Angeles Angelman Syndrome National Walk is a community-wide event annual event themed to raise funds and awareness for Angelman Syndrome.

Angelman syndrome (AS) is a neuro-genetic disorder that occurs in one in 15,000 live births. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

We are looking for volunteers to help with event set-up, goody bag stuffing, registration, signage, and clean-up.

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About Los Angeles Angelman Syndrome Walk

Location:

Shane's Inspiration at Griffith Park, 4800 Crystal Springs Rd., Los Angeles, CA 90027, US

Mission Statement

The Angelman Syndrome Foundation raises funds for Angelman syndrome research and supports families. Use this website to keep abreast of current information regarding research, education, general information and therapies for Angelman syndrome. If you have any questions or would like additional information please email the ASF at info@angelman.org

Description

Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

Because of its genetic relationship to autism and other disorders, many researchers believe that curing Angelman syndrome will lead to cures for similar disorders. Angelman syndrome research is on the cusp of potential treatments to reverse the debilitating symptoms of Angelman syndrome.

CAUSE AREAS

Children & Youth
Children & Youth

WHEN

Sat May 21, 2022
07:00 AM - 01:00 PM

WHERE

Shane's Inspiration at Griffith Park4800 Crystal Springs Rd.Los Angeles, CA 90027

(34.13496,-118.28303)
 

SKILLS

  • Youth Services
  • Administrative Support

GOOD FOR

  • Kids
  • Teens
  • People 55+

REQUIREMENTS

  • We are looking for volunteers who can help out - there is no time commitment.
  • We would like to ask that masks are worn because the Angelman children are medically fragile.

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