Los Angeles Angelman Syndrome Walk

Cause Area

  • Children & Youth
  • People with Disabilities

Location

Shane's Inspiration at Griffith Park4800 Crystal Springs Rd.Los Angeles, CA 90027 United States

Organization Information

Mission Statement

The Angelman Syndrome Foundation raises funds for Angelman syndrome research and supports families. Use this website to keep abreast of current information regarding research, education, general information and therapies for Angelman syndrome. If you have any questions or would like additional information please email the ASF at info@angelman.org

Description

Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

Because of its genetic relationship to autism and other disorders, many researchers believe that curing Angelman syndrome will lead to cures for similar disorders. Angelman syndrome research is on the cusp of potential treatments to reverse the debilitating symptoms of Angelman syndrome.

Reviews

Would you recommend Los Angeles Angelman Syndrome Walk?
0 reviews Write a review

Report this organization