• A group opportunity. Invite your friends.
  • 17 people are interested
 

Great Strides Walk - Miami

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ORGANIZATION: Cystic Fibrosis Foundation

  • A group opportunity. Invite your friends.
  • 17 people are interested
Great Strides

The Great Strides Miami walk and beach party needs your help!

Great Strides provides a fantastic opportunity for family, friends, students, and colleagues to come together and make a difference. The event harnesses the power of people with a shared vision and encourages collaboration, team building, and leadership, as we take steps to find a cure.

Volunteer Positions Available:

Event set-up, Greeters, Registration, Food Tent, T-Shirt tent, Kids Korner, Water stations, Event clean-up/takedown

Volunteer Shift Times:

5:00am - 3:00pm is the full shift. Volunteers may also choose 5am-10am or 10am-3pm.


For more information or to sign up, contact Amanda Bolanos at 954-739-5006 or abolanos@cff.org.

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About Cystic Fibrosis Foundation

Location:

3443 NW 55th Street, Bldg 1, Fort Lauderdale, FL 33309, US

Mission Statement

Until we end this disease, our team will work tirelessly to extend and enhance life for those with cystic fibrosis by functioning as:

  • Research pioneers, blazing new trails in drug development;
  • Fund-raisers, securing the money needed to support the fight against CF;
  • Advocates, keeping CF a top priority in government, industry and research;
  • Stewards, using your donations to help fuel the creation of new drugs;
  • Caregivers, linking patients and families to specialized CF care; and
  • Helping hands, offering support, information and resources.

Description

  • When the Foundation was established in 1955, children with CF rarely lived long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, many people with the disease can now expect to live into their 30s, 40s and beyond.
  • In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis -- a monumental breakthrough on the road to a cure.
  • The Foundation played an integral role in the development and FDA approval of five therapies that are now part of regular treatment regimens for many with CF. The Foundation has a robust pipeline of promising potential drugs that target the disease from every angle.
    In 2012, the FDA approved the groundbreaking drug Kalydeco, the first drug to treat the underlying cause of CF in a small group of people with the disease. The Foundation also is supporting research that may eventually treat the root cause of the disease in all people living with CF.

CAUSE AREAS

Children & Youth
Community
Health & Medicine
Children & Youth, Community, Health & Medicine

WHEN

Sun Apr 28, 2019
05:00 AM - 03:00 PM

WHERE

Historic Virginia Key Beach Park4020 Virginia Beach DriveKey Biscayne, FL 33149

(25.734354,-80.15981)
 

SKILLS

GOOD FOR

  • Teens
  • People 55+
  • Group

REQUIREMENTS

  • Must be at least 14

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