Board members, committee members for Non-profit
HDSA of Washington State
A group opportunity. Invite your friends.
2 people are interested
Huntington’s Disease Society of America (HDSA) Washington State Chapter is looking for volunteers to fill various roles within our chapters to include:
Chapter committees shall work on delegated responsibilities separately but will communicate with other committees to increase effectiveness and productivity. Each committee will identify a Chairperson, who will report directly to the Chapter President Chair. The Chapter President or Chair is responsible for ensuring that all committees are functioning effectively and working towards established goals. Previous experience in these areas is not necessary to serve on these committees.
Volunteer Development Committee - The Volunteer Development Committee shall work to support current volunteers in fundraising efforts and cultivate new relationships to recruit additional volunteers for Chapter activities. The Committee shall work alongside all other standing and special committees to build relationships with volunteers and to publicize and promote local opportunities.
Fundraising Committee - The Fundraising Committee shall work to establish a fundraising plan that incorporates the HDSA Chapter Agreement, Approved Budget, Performance Standards, and Plan of Work. The Committee shall work with existing event committees on ways to meet and exceed fundraising goals every year. The Committee is responsible for the involvement of all of the Chapter Board Committee in fundraising activities (i.e.: securing sponsorship, local grants, etc.) and for monitoring all fundraising revenues and expenses.
Community Service Committee - The Community Service Committee is responsible for managing the HDSA Chapter Social Worker (Chapters only), support groups, and educational events, ensuring these entities are working towards established goals. In addition, this Committee assists individuals and families affected by HD and health care professionals by providing an optimum level of support through information and referrals to appropriate resources. The Community Service Chair will manage the Social Worker’s schedule and pay. *The Chair, along with the Social Worker, will fill out quarterly reports and submit these to the Assistant Director of Community Services. This committee helps to coordinate the local educational event to provide HD families, caregivers and healthcare professional with practical information about HD, as well as a forum to network with members of the community. The committee will apply for the HDSA Educational grant and adhere to grant guidelines.
Advocacy Committee - The Advocacy Committee shall work to increase political awareness of HD and HDSA by involving legislative figures in Chapter plans and goals. The Committee shall receive updated information from the HDSA Manager of Advocacy and Education and share effective messages that can be communicated consistently to decision makers. The Committee shall be aware of and promote the value and public benefits of HDSA’s National advocacy efforts and shall work to consistently cultivate local relationships. The Advocacy Committee is also responsible for meeting with local legislation and promoting Huntington’s Disease Awareness Month in May.
Communications/Web Content Committee - The Communications/Web Content Committee is responsible for ensuring the development and maintenance of collaborative working relationships with press and publicity in the community and maintaining and updating the Chapter Website. The Committee must communicate the HDSA Mission and local fundraising efforts concisely and effectively. The Committee should consistently update press releases and public service announcements for the Chapter fundraising, advocacy, and awareness efforts. All event, marketing, and PR materials must meet the HDSA Brand Manual guidelines. In addition, all event materials must be submitted to the National Communications and Marketing Team at least 4 weeks prior to printing or distributing for final branding approval. The HDSA Brand Manual can be found on HDSA Connect.
Team Hope Walk Committee - The Team Hope Walk Committee will work alongside the Regional Staff Contact to build upon an existing or create a new Team Hope Walk in their community. The Team Hope Program is HDSA’s signature grassroots fundraising campaign. Since their inception in 2007, Team Hope Walks are held annually in over 100 different cities across the country and have raised over $9 million for HDSA. By forming a Team Hope Committee, you are able to divide the "to do tasks" for this event between committee volunteers which might include each volunteer being responsible for one sub-committee such as - engaging corporate sponsors, recruiting new participants, hosting wraparound events, event promotions, in-kind donations and volunteer recruitment.
About HDSA of Washington State
PO Box 27765, http://washington.hdsa.org/, Seattle, WA 98125, US
HDSA mission is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. To promote and support research and medical efforts to eradicate Huntington's Disease. To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington's disease. For more information www.hdsa.org and http://washington.hdsa.org/
Huntington’s disease (also called HD) is a fatal genetic brain disorder that causes the progressive breakdown of nerve cells. It deteriorates a person’s physical and mental abilities usually during their prime working years (30 to 50 years) and unfortunately there is no cure. HD is a family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene.
Through seven HDSA regions with 50 volunteer-based chapters and affiliates, 200+ support groups, we reach out across the nation to offer HD patients and their family’s guidance, encouragement, resource information and leadership opportunities. There are HDSA events, meetings, and seminars, as well as HDSA advocacy programs -- truly a place to care, share while we all work toward a cure.
Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Fifty HDSA Centers of Excellence at locations in major hospitals and university medical centers are supported by HDSA across the continental United States. The national office also produces and distributes, free of charge, publications and informational materials on HD and maintains a toll-free information hotline to assist physicians, patients and family members.