Volunteer Board Member for HDSA Washington State Chapter
HDSA of Washington State
A group opportunity. Invite your friends.
7 people are interested
Help the Huntington’s Disease Society of America (HDSA) Washington State Chapter accomplish it’s mission of improving the lives of everyone affected by Huntington’s Disease (HD) and their families.
Chapter board members help to determine the needs of the HD community in Washington State through education, advocacy, support, and research. This is accomplished through fundraising and awareness events throughout the year either in person or virtually.
Board meetings are held monthly virtually with one face to face meeting when CDC deems it safe to do so. Commitment is two (2) years with the opportunity to be re-elected two more terms. Each board member must participate in at least one yearly event.
Chapter committees shall work on delegated responsibilities separately but will communicate with other committees to increase effectiveness and productivity. Each committee will identify a Chairperson, who will report directly to the Chapter President Chair. The Chapter President or Chair is responsible for ensuring that all committees are functioning effectively and working towards established goals. Previous experience in these areas is not necessary to serve on these committees.
- Volunteer Development Committee
- Fundraising Committee
- Community Service Committee
- Advocacy Committee
- Communications/Web Content Committee
- Team Hope Walk Committee
We are looking for people to help with communications, fundraising, board development, advocacy and educating the public and medical professionals about the disease.
About HDSA of Washington State
PO Box 27765, http://washington.hdsa.org/, Seattle, WA 98125, US
HDSA mission is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. To promote and support research and medical efforts to eradicate Huntington's Disease. To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington's disease. For more information www.hdsa.org and http://washington.hdsa.org/
Huntington’s disease (also called HD) is a fatal genetic brain disorder that causes the progressive breakdown of nerve cells. It deteriorates a person’s physical and mental abilities usually during their prime working years (30 to 50 years) and unfortunately there is no cure. HD is a family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene.
Through four HDSA regions with 54 volunteer-based chapters and affiliates, 200+ support groups, we reach out across the nation to offer HD patients and their family’s guidance, encouragement, resource information and leadership opportunities. There are HDSA events, meetings, and seminars, as well as HDSA advocacy programs -- truly a place to care, share while we all work toward a cure.
Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Fifty HDSA Centers of Excellence at locations in major hospitals and university medical centers are supported by HDSA across the continental United States. The national office also produces and distributes, free of charge, publications and informational materials on HD and maintains a toll-free information hotline to assist physicians, patients and family members.