- A group opportunity. Invite your friends.
-
21 people are interested
Volunteer Board Member for HDSA Washington State Chapter
ORGANIZATION: HDSA of Washington State
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
21 people are interested
The Chapter Board of Directors is the governing body of the Chapter responsible for ensuring that all Chapter activities are conducted in accordance with the HDSA Strategic Plan, Chapter Agreement, Plan of Work, and HDSA policies and procedures. The Chapter Board is led by an Executive Committee consisting of the President, Vice President, Secretary and Treasurer. All members will serve on at least one committee (Team Hope Walk, Fundraising, Advocacy, Etc...) Board members ensure the financial health of the chapter and identify the best community resources for their area. Generally the term of service is two years, with the ability to be re-elected two times for a total of 6 years of service.
What are some of the Specific Responsibilities?
- Attend and participate in board meetings and/or calls.
- Serve on at least one committee: fundraising, advocacy, team hope, volunteer development, community services, & communications.
- All board members participate in chapter fundraising events, including helping to secure corporate support, attendance, event day help, and encouraging event registration.
- Recruit and engage new board members, committee members, and volunteers.
- Be an HDSA ambassador in the community.
- Participate in regional calls and share call updates with chapter committee members.
- Communicate and partner with the national HDSA staff.
- Participate in planning for the health and longevity of the chapter.
What is the Time Commitment?
While this can change depending on the time of the year, most of our board members commit 2-5 hours per week to HDSA activities. In addition to the meetings and events below, board members spend time reaching out to potential partners, thanking sponsors, talking with each other, and working on outreach.
- Board Meetings: 4-6 meetings per year, 60-90 minutes each
- Event Attendance: 3-4 events per year, 2-4 hours each
- Committee Meetings: 4-6 meetings per year, 60-90 minutes each
More opportunities with HDSA of Washington State
No additional volunteer opportunities at this time.
About HDSA of Washington State
Location:
PO Box 27765, http://washington.hdsa.org/, Seattle, WA 98125, US
Mission Statement
HDSA mission is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. To promote and support research and medical efforts to eradicate Huntington's Disease. To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington's disease. For more information www.hdsa.org and http://washington.hdsa.org/
Description
Huntington’s disease (also called HD) is a fatal genetic brain disorder that causes the progressive breakdown of nerve cells. It deteriorates a person’s physical and mental abilities usually during their prime working years (30 to 50 years) and unfortunately there is no cure. HD is a family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene.
Through four HDSA regions with 54 volunteer-based chapters and affiliates, 200+ support groups, we reach out across the nation to offer HD patients and their family’s guidance, encouragement, resource information and leadership opportunities. There are HDSA events, meetings, and seminars, as well as HDSA advocacy programs -- truly a place to care, share while we all work toward a cure.
Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Fifty HDSA Centers of Excellence at locations in major hospitals and university medical centers are supported by HDSA across the continental United States. The national office also produces and distributes, free of charge, publications and informational materials on HD and maintains a toll-free information hotline to assist physicians, patients and family members.
CAUSE AREAS
WHEN
WHERE
PO Box 27765Seattle, WA 98165
DATE POSTED
January 4, 2025
SKILLS
- Event Management
- Marketing & Communications (Mar/Com)
- Marketing Strategy & Planning
- Administrative Support
- Professional Development
GOOD FOR
- Kids
- Teens
- People 55+
- Public Groups
REQUIREMENTS
- Must be at least 10
- Orientation or Training
- Monthly board and/or committee meetings. Time commitment is flexible.