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Mission Statement

HDSA Mission

The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families.

To promote and support research and medical efforts to eradicate Huntington's Disease.

To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.

To educate the public and health professionals about Huntington's disease.


HDSA currently supports more than 40 scientists and 16 major HD laboratories in North America and around the world through our HDSA Coalition for the Cure with annual grants which range from $40,000 to $100,000 for HD investigations. Twenty-one HDSA Centers of Excellence at locations in major hospitals and university medical centers are supported by HDSA across the continental United States. The national office also produces and distributes, free of charge, publications and informational materials on HD and maintains a toll-free information hotline to assist physicians, patients and family members. Through 12 HDSA regions, 38 volunteer-based chapters and affiliates, 200+ support groups, we reach out across the nation to offer HD patients and their families guidance, encouragement, resource information and leadership opportunities at HDSA events, meetings and seminars -- truly a place to care, share while we all work toward a cure. We also work towards change through our HDSA advocacy programs.

HDSA is a 501(c)3 not-for-profit organization recognized as a charity in good standing by the IRS(EIN: 133349872) and meets all the required high Standards of Excellence of the BBB Wise Giving Alliance, Community Health Charities, National Health Council and is proud to have an A rating from the American Institute of Philanthropy.

Visit our Living with HD Section for more information on HD resources.

Note: HDSA is a member of the National Health Council, National Voluntary Health Agencies, National Association of Rare Disorders, Alliance of Genetic Support Groups, Health Care Quality Assurance, Independent Sector and International Huntington Association.

Note: The resource information provided on this Website is for informational purposes only unless otherwise stated.

Inclusion on a particular list does not constitute a recommendation or endorsement by HDSA. Only those facilities or professional groups that are prefaced by "HDSA" are recognized by HDSA (i.e., HDSA Centers of Excellence, HDSA Social Workers, HDSA chapters or HDSA Support Groups).


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