Event Planner and Event Volunteers
HDSA of Washington State
Calling all volunteers. Have a passion for non-profits, healthcare and/or diseases and want to do something good? The Washington State Chapter of the National Huntington’s Disease Society of America (HDSA) in helping the fight against Huntington’s disease (HD). Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
We are looking for Event Planner Coordinator, event planning committee members and event on-site volunteers.
Event volunteers HDSA Team Hope Walk and 5K Date: September 18 Location: Magnuson Park Website: TBA
Team Hope Walk Committee - The Team Hope Walk Committee will work alongside the HDSA Regional Staff Contact to build upon an existing or create a new Team Hope Walk in their community. The Team Hope Program is HDSA’s signature grassroots fundraising campaign. Since their inception in 2007, Team Hope Walks are held annually in over 100 different cities across the country and have raised over $9 million for HDSA. By forming a Team Hope Committee, you are able to divide the "to do tasks" for this event between committee volunteers which might include each volunteer being responsible for one sub-committee such as - engaging corporate sponsors, recruiting new participants, hosting wraparound events, event promotions, in-kind donations and volunteer recruitment.
About HDSA of Washington State
PO Box 27765, http://washington.hdsa.org/, Seattle, WA 98125, US
HDSA mission is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. To promote and support research and medical efforts to eradicate Huntington's Disease. To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington's disease. For more information www.hdsa.org and http://washington.hdsa.org/
Huntington’s disease (also called HD) is a fatal genetic brain disorder that causes the progressive breakdown of nerve cells. It deteriorates a person’s physical and mental abilities usually during their prime working years (30 to 50 years) and unfortunately there is no cure. HD is a family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene.
Through seven HDSA regions with 50 volunteer-based chapters and affiliates, 200+ support groups, we reach out across the nation to offer HD patients and their family’s guidance, encouragement, resource information and leadership opportunities. There are HDSA events, meetings, and seminars, as well as HDSA advocacy programs -- truly a place to care, share while we all work toward a cure.
Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Fifty HDSA Centers of Excellence at locations in major hospitals and university medical centers are supported by HDSA across the continental United States. The national office also produces and distributes, free of charge, publications and informational materials on HD and maintains a toll-free information hotline to assist physicians, patients and family members.