Newer, burgeoning non-profit focused on a rare autoimmune disease, idiopathic inflammatory myopathy, is seeking dedicated volunteer board members to help propel us to the next level. Our all-volunteer organization provides support to patients, caregivers, and family members, enriching video support meet ups, video activity and video education sessions, financial assistance for medical expenses, household expenses, and medical travel, patient advocacy, a website social networking opportunity, and increases public awareness. We currently serve about 5300 members including our support groups members We team up with leaders in the research world to connect patients with medical studies, both pharmaceutical and functional.
Our goal is to help make patients' and family members' daily lives better while living with this debilitating, and often intractable disease. No medical experience or relationship to the disease is necessary, only a willingness to help an underserved community of patients, a desire to learn, and time and eagerness to serve! Our board members are spread out all over the United States and meetings are held via conference call and/or video conference calling, so geographical location is not an issue. We have fun while accomplishing our mission, so we promise you will enjoy the work you do with us! Please join our enthusiastic team and make a difference in many lives!
You can learn more about us on our website, UnderstandingMyositis.org
- Program Management
- Donor Management
- Grant Writing / Research
- CSR / Volunteer Coordination
- Community Outreach
Good Match For
Requirements & Commitment
- Driver's License Needed
- Must be at least 18
- 8-10 hours per month plus monthly board meetings
- Be willing to learn about Myositis and be enthusiastic about helping others.