About
Newer, burgeoning non-profit focused on a rare autoimmune disease is seeking dedicated volunteer board members to help propel us to the next level. Our all-volunteer organization provides support groups to patients, caregivers, and family members, enriching video chat meet ups, education, financial assistance for medical expenses, household expenses, and medical travel, patient advocacy, a website social networking opportunity, and increases public awareness. We currently serve about 3300 members including our support groups members We team up with leaders in the research world to connect patients with medical studies, both pharmaceutical and functional.
Our goal is to help make patients' and family members' daily lives better while living with this debilitating, and often intractable disease. No medical experience or relationship to the disease is necessary, only a willingness to help an underserved community of patients, a desire to learn, and time and eagerness to serve! Our board members are spread out all over the United States and meetings are held by phone, so geographical location is not an issue. We have fun while accomplishing our mission, so we promise you will enjoy the work you do with us! Please join our enthusiastic team and make a difference in many lives!
You can learn more about us on our website, UnderstandingMyositis.org
Skills
- Program Management
- Donor Management
- Fundraising
- Grant Writing / Research
- CSR / Volunteer Coordination
- Community Outreach
Good Match For
N/A
Requirements & Commitment
- Driver's License Needed
- Must be at least 18
- 8-10 hours per month plus monthly board meetings
- Be willing to learn about Myositis and be enthusiastic about helping others.