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Myositis Support and Understanding (MSU) is dedicated to improving the lives of Myositis patients through public policy, self-advocacy programs, need-based financial assistance for medical-related expenses, and to provide support and education to patients, caregivers, healthcare providers, the general public, and legislators about Myositis. MSU will foster direct involvement with other Myositis organizations to help promote treatment innovation and research with our collective eyes on a cure and provide financial support to organizations that share similar visions.
Myositis Support and Understanding is a growing nonprofit organization founded on the idea that even though people, with this rare disease called Myositis, are diverse and far-stretched across the globe, they can come together to share information on the effects, commonalities, and complexities of Myositis to make each other’s lives better.
Our ultimate goals include providing financial assistance to our members on an as-needed basis to help cover the following extraordinary circumstances: expensive treatments that are not covered by insurance, travel expenses to see one of few doctors who specialize in Myositis, and help with living expenses while they transition from an active working life to one where they are forced to apply for Social Security Disability. We will advocate for our members and Myositis patients with all levels of policy-makers, insurance companies, and other medical service decision-makers. We will also contribute any excess funds, if any, to Myositis cure- and treatment-centered research organizations to help further our shared goals.
- Jerry Williams
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