-
11 people are interested
Seeking writer to document cancer survivors' stories
ORGANIZATION: The Life Raft Group
Please visit the new page to apply.
-
11 people are interested
I work for a non-profit that supports patients with a rare GI cancer. Every day I speak with someone who has an incredible story to tell that could inspire others yet they don't know how to put it in writing nor do we have the resources to document it ourselves. I am looking for someone who can virtually "interview" these cancer survivors and write their stories so that we can publish them on our website and newsletter.
More opportunities with The Life Raft Group
No additional volunteer opportunities at this time.
About The Life Raft Group
Location:
155 US Highway 46, Suite 202, Wayne, NJ 07470, US
Mission Statement
The mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
Description
The Life Raft Group (LRG) started in 2000, when a handful of patients in the early Gleevec trials began sharing their experiences online. Many patients had been misdiagnosed with leiomyosarcoma and were just now finding out they had an entirely different cancer - gastrointestinal stromal tumor, or GIST. Sharing their stories and experiences online helped them in a variety of ways, including gaining much-needed support while facing a rare disease and managing the side-effects of a new drug. In the next two years, this group formed a newsletter and Web site to share information with an even wider audience, before formally incorporating in June 2002. Over the years, the Life Raft Group has grown immensely, meeting the challenges facing GIST patients and caregivers and the research community every step of the way.
The Life Raft Group's (LRG) vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this, we rely on four key pillars;
- Leverage the patient perspective to drive innovative solutions in cancer research
- Educate and empower patients to take a larger role in their care
- Accelerate research outcomes through collaborative efforts
- Increase access to effective treatments worldwide
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
January 4, 2017
SKILLS
- Technical Writing
- Copy Writing / Copy Editing
GOOD FOR
N/A
REQUIREMENTS
N/A