The Life Raft Group
- Advocacy & Human Rights
- Health & Medicine
Location155 US Highway 46Suite 202Wayne, NJ 07470 United States
The mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
The Life Raft Group (LRG) started in 2000, when a handful of patients in the early Gleevec trials began sharing their experiences online. Many patients had been misdiagnosed with leiomyosarcoma and were just now finding out they had an entirely different cancer - gastrointestinal stromal tumor, or GIST. Sharing their stories and experiences online helped them in a variety of ways, including gaining much-needed support while facing a rare disease and managing the side-effects of a new drug. In the next two years, this group formed a newsletter and Web site to share information with an even wider audience, before formally incorporating in June 2002. Over the years, the Life Raft Group has grown immensely, meeting the challenges facing GIST patients and caregivers and the research community every step of the way.
The Life Raft Group's (LRG) vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this, we rely on four key pillars;
- Leverage the patient perspective to drive innovative solutions in cancer research
- Educate and empower patients to take a larger role in their care
- Accelerate research outcomes through collaborative efforts
- Increase access to effective treatments worldwide