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2 people are interested
Physician Liaison Volunteers
ORGANIZATION: PUTTING RARE DISEASES PATIENTS FIRST!(R)
Please visit the new page to apply.
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2 people are interested
Physician Liaison Volunteers
Physician Liaison Volunteers will represent PRDPF! in forging links with clinics and physician offices where patients with rare diseases are treated. They will be responsible for communicating the information that is available from the PRDPF! so that patients will be provided with this information.
These volunteers must have experience in treating patients with rare diseases. They must also be medically qualified, or a registered Pharmacist. The Putting Rare Diseases Patients First! organization provides a unique opportunity for those wanting to serve patients with rare diseases. Because it will be important to expend significant amounts of time training volunteers to represent PRDPF! we are requiring all volunteers that are formally selected for the roles to commit a minimum of 3 weeks of ten hours per week.
Reports to the President,Dr. Lorna Speid or VP of Patient Liaison
This is a volunteer position
Physician Liaison Responsibilities:
- Sits on the Physician Liaison Committee
- Form links with physicians and clinics that treat patients with rare diseases
- Develop strategies for forging links and connections
- Speak at conferences
- Write papers and Blogs
- Forge links with government agencies on behalf of PRDPF!
- Provide input on the digital outreach strategy being developed and forged by
the Marketing function
Outreach Responsibilities:
- Act as an ambassador for Putting Rare Diseases Patients First!
- Help raise awareness and advocate for Rare Diseases Patients First!
- Participate in media and public relations efforts when needed
- Protect the confidentiality of patients, their families and our strategic information
Liaisons should not:
- Give medical advice
- Feel compelled to assist patients and their families with personal problems
- Share confidential information
Qualifications:
- Board certified physician or PharmD
- Have worked in a hospital or clinic
- Experience treating patients with rare diseases
- Be self motivated
- Have excellent written and oral communication skills.
- Excellent command of the English language
- Ability to empathize with patients and parents.
- Ability to take the initiative
- Self starter
- Integrity and good character are essential for this position
- Ability to make telephone calls to hospitals, patients, clinics, patient groups, that are
serving the rare disease patient community. - No conflict of interest
Geography
UK (England, Scotland, Wales), France, Italy, Germany, Switzerland, Sweden, Norway,
Finland, Other countries in Europe, Canada
The closing date for applications is 15 th January 2017.
More opportunities with PUTTING RARE DISEASES PATIENTS FIRST!(R)
No additional volunteer opportunities at this time.
About PUTTING RARE DISEASES PATIENTS FIRST!(R)
Location:
13243 KINGSFIELD CT, SAN DIEGO, CA 92130, US
Mission Statement
The mission of the Putting Rare Diseases Patients First! organization is to provide empowering information to patients with rare diseases, and the parents of children with rare diseases. This is done using Web seminars (Webinars), Blogs, newsletters, and the Website.
Description
A 501 c 3 organization. The organization is virtual, with officers and volunteers in different parts of the US and the world.
CAUSE AREAS
WHEN
WHERE
Commonwealth AvenueBoston, MA 02215
DATE POSTED
December 10, 2019
SKILLS
- Patient Care
GOOD FOR
- People 55+
REQUIREMENTS
- Background Check
- Orientation or Training
- Minimum of 10 hours per month
- Must be medically qualified - may be a Physician or a PharmD/Pharmacist