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  • ORGANIZATION PROFILE
  • PUTTING RARE DISEASES PATIENTS FIRST!(R) PUTTING RARE DISEASES PATIENTS FIRST!(R)

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(32.95872,-117.23259)
 

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Mission Statement

The mission of the Putting Rare Diseases Patients First! organization is to provide empowering information to patients with rare diseases, and the parents of children with rare diseases. This is done using Web seminars (Webinars), Blogs, newsletters, and the Website.

Description

A 501 c 3 organization. The organization is virtual, with officers and volunteers in different parts of the US and the world.

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