Cause Areas


It's flexible! We'll work with your schedule.


1133 19th St. N.WWashington, DC 20201


The Rare Genomics Institute aims to advance research beyond genome sequencing for some of the most challenging rare disease cases. We recognize that in the majority of cases sequencing data alone will not be actionable for patients. Therefore, we are leveraging our broad network of expert biomedical researchers to crowd source scientific ideas, experiments, and analyses that may lead to a better understanding of rare diseases. www.raregenomics.org .

The outreach coordinator will coordinate RG’s community outreach and engagement initiatives. He/she will work to increase the organization’s presence in the community and will build relationships with individuals, citizen groups and other organizations in support of RG’s work. The outreach coordinator will directly contribute to increasing RG’s capacity to advance research, for some of the most challenging rare disease cases, by developing its outreach programs and increasing community support for the organization.

Duties and Responsibilities

  • Develop and implement outreach strategies to increase RG’s presence in the community

  • Identify relevant community events and coordinate participation in these events

  • Coordinate online outreach activities, including social media and website updates Coordinate production and distribution of promotional campaign materials

  • Actively reach out to community groups and organizations to explore partnership opportunities

  • Contribute to communications, outreach, marketing, public relations and media relations activities as required


  • Excellent organizational, written and oral communication skills Project management experience

  • Detail oriented and committed to meeting deadlines

  • Excellent interpersonal skills

  • Works well independently

This position requires a minimum 6-month commitment for 1-2 days per week during office hours (Monday to Friday from 9:00 am to 5:00 pm). Flexible schedule of approximately 10 hours per week, dependent upon timing of organizational commitments and deadlines.

Benefits and recognition

This position provides valuable experience for Non-Profit Management, Fundraising and/or Event Management students; individuals with an interest in gaining experience in the non-profit sector or in the healthcare field; and anyone with a passion for finding a cure for rare diseases. Volunteers are highly valued members of the RG team and contribute to making a significant difference in RG’s ability to advance research beyond genome sequencing for some of the most challenging rare disease cases.


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