• 1 person is interested
 

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ORGANIZATION: Chromosome Disorder Outreach Inc.

  • 1 person is interested

~Working with CDO to develop effective fundraising campaigns

~Organizing and helping with fundraising activities

~Assisting CDO members in learning best approaches to fundraising for special events - Rare Disease Day, Rare Chromosome Awareness Week and more

~Suggesting fundraising ideas and events

More opportunities with Chromosome Disorder Outreach Inc.

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No additional volunteer opportunities at this time.

About Chromosome Disorder Outreach Inc.

Location:

PO BOX 724, BOCA RATON, FL 33429, US

Mission Statement

Our mission is to provide support and information to anyone diagnosed with a rare chromosome or gene disorder. CDO actively promotes research and a positive community understanding of all chromosome and gene disorders. Chromosome Disorder Outreach Inc. is a member of the National Organization of Rare Disorders and the Genetic Alliance. CDO is a 2023 Great Nonprofit.

Description

CDO offers individuals the chance to connect with others coping with the same of similar chromosomal or gene disorder diagnosis in many ways. We provide each member with personalized networking/family matching services based upon chromosomal analysis, medical/developmental symptoms and/or regional location. We offer Ask the Doctor services through our genetic consulting program. Also we maintain an extensive library of information, database registry and interactive website. We publish a periodic newsletter, new chromosome reports and provide outreach through our social media applications too. Additionally we make available access to research opportunities and interaction with our medical advisory board.

CAUSE AREAS

Community
Health & Medicine
People with Disabilities
Community, Health & Medicine, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Event Planning / Management
  • Fundraising
  • Donor Management
  • Marketing & Communications (Mar/Com)
  • Marketing Strategy & Planning
  • Community Outreach

GOOD FOR

N/A

REQUIREMENTS

  • variable
  • experience with non-profits, rare diseases helpful

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