Chromosome Disorder Outreach Inc.Chromosome Disorder Outreach Inc.
Our mission is to provide support and information to anyone diagnosed with a rare chromosome change, rearrangement or disorder including some gene mutation disorders. CDO actively promotes research and a positive community understanding of all chromo... Read more
Our mission is to provide support and information to anyone diagnosed with a rare chromosome change, rearrangement or disorder including some gene mutation disorders. CDO actively promotes research and a positive community understanding of all chromosome disorders. Chromosome Disorder Outreach Inc. is a member of NORD and the Genetic Alliance.
CDO offers individuals the chance to connect with others coping with the same of similar chromosomal diagnosis in many ways. We provide each member with personalized networking/family matching services based upon chromosomal analysis, medical/developmental symptoms and/or regional location. We offer Ask the Doctor services through our genetic consulting program. Also we maintain an extensive library of information, database registry and interactive website. We publish a periodic newsletter, new chromosome reports and provide outreach through our social media applications too. Additionally we make available access to research opportunities and interaction with our medical advisory board.
Not only are the admins a pleasure to work with, but, through helping them, you are also helping families cope with sometimes devastating and confusing diagnoses.
The work that is required is fairly simple, and they make sure they don't ask for too much from you. All of the work I do for them is online at my convenience. It's wonderful being able to help others without adding extra stress to my life.
As a parent of a child with a rare chromosome disorder, it has been heartwarming to be able to help others in the same or similar situation... and all from the comfort of my own home! I have volunteered for CDO since 2010, helping with graphic work, social media, event planning and editing. I have met "virtual" friends and found others who share the same passion as me... bringing awareness to the world about rare chromosome disorders.