• 20 people are interested
 

Grant Writer

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ORGANIZATION: Rare Genomics Institute

  • 20 people are interested
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Do good for your community while using your professional expertise. Work remotely with talented peers on a rewarding, nonprofit program. The Rare Genomics Institute (RG) is making a difference. RG is a nonprofit organization that helps families affected by rare diseases and in need of genome research.

Responsibilities include

  • Develop and write grant proposals to grant-making organizations, persuasively communicating RG’s mission and programs to potential funders.

  • Assemble and submit support requests, including letters, proposals, budgets, and presentations.

  • Maintain calendar to ensure timely submission of letters of inquiry, proposal deadlines, and reports.

  • Identify, define, and develop funding sources to support existing and planned program activities.

  • Prioritize projects to keep multiple projects moving in a timely manner and meet deadlines.

  • Must be able to attend virtual team meetings every other Thursday at 8pm EST, duration: 1 hour..

  • Must have an interest or background in science and technology.

Desired skills and experience:

  • Bachelor's Degree in relevant field (eg. life sciences, public health, nonprofit management, communications, marketing)

  • Preference for candidates pursuing a graduate or professional degree

  • Excellent written and verbal communication skills.

  • 5-10 hour commitment each week (required).

  • Solid understanding of budgets as they relate to proposals and grants.

  • Work collaboratively and independently to achieve stated goals.

  • Ability to thrive in a fast-paced, self-starter environment.

You will:

  • Meet a tremendous group of like-minded professionals

  • Deepen your connection with your community

  • Keep your skills sharp by applying them in the nonprofit sector

  • Share your expertise with others

  • Boost your resume and portfolio

  • Stand out from others in your field

  • Create lasting relationships

  • Network with an active online community of professionals

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About Rare Genomics Institute

Location:

8504 Firestone Blvd., #198, Downey, CA 90241, US

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.

Description

Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.

Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!

CAUSE AREAS

Children & Youth
Health & Medicine
People with Disabilities
Children & Youth, Health & Medicine, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Literacy / Reading
  • Budgeting
  • Grant Writing / Research
  • Verbal / Written Communication

GOOD FOR

N/A

REQUIREMENTS

N/A

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