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The United Leukodystrophy Foundation is dedicated to helping children and adults who have leukodystrophy or other white matter disorders and assisting the family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.
The United Leukodystrophy Foundation is a non-profit, voluntary health organization incorporated in 1982. The Foundation works with families and researchers in over 40 countries to increase public awareness of the leukodystrophies; to promote and support research of the leukodystrophies; to provide leukodystrophy patients and families with information about the disease and to assist them in referrals for medical care, social services and genetic counseling and to coordinate a communication network among affected families; to coordinate cooperation between donor agencies, governmental agencies and scientific programs with the private sector.
- Karen Sharp
- (815) 895-3211
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