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The Huntington's Disease Society of America, Greater NY-NJ Region, is part of a nationwide network that provide support and refferals as well as state of the art regional care for individuals with HD and their families. The HDSA provides: Research; funding both basic and clinical research into the causes and treatment of HD and, ultimately, a cure. Patient and family services; a national network of services and referrals for families through local chapter, social workers, and Centers of Excellence. Education; dissemination of information and ways to help the public, HD families and allied health professionals.
Huntington's Disease (HD) is a hereditary degenerative brain disorder that slowly robs the affected invidual of the ability to walk, talk, think and reason. HD affects both sexes and all races and ethnic groups around the world. Symptoms of HD usually appear in an invidual between 30-50 years of age and progress over a 10 to 25 year period. Approximately 30,000 Americans have HD and over 150,000 more are at risk of inheriting it from a parent. Currently, there is no cure.
- Sarah Katerle
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