• ORGANIZATION PROFILE
  • SAVING CASE & FRIENDS INC SAVING CASE & FRIENDS INC

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Mission Statement

Saving Case & Friends is a 501(c)(3) nonprofit Hunter Syndrome research & advocacy foundation. It exists to fund a cure for Hunter Syndrome / Mucopolysaccharidosis II through research, fundraising, and advocacy.

Description

SCF raises funds and then distributes them to research programs focused on Hunter Syndrome, as well as assisting third parties in designing research and clinical programs most likely to be successful in treating Hunter Syndrome. SCF also advocates with regulatory and legislative bodies, as well as industry, for policies supporting the most effective and efficient clinical research programs and compassionate use / expanded access protocols. Throughout its efforts, SCF places a high priority on raising awareness of Hunter Syndrome in the general public and healthcare communities.

Website

http://savingcase.com

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