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Many of our founding Board Members are "Metis" -- individuals of mixed cultural bckgrounds which includes Native American bloodlines from the Apache, Comanche and Choctaw peoples. We value, honor and practice our respective heritages, while according others the respect due their paths. The strong influence of a tribal heritage is evidenced in our commitment to "walk lightly upon the Earth", take only what we need and to care for others -- it is out of these values that T.P.R.C. came into being. We have developed programs to speak for and assist those whose voices seldom get heard... those who are ignored by politicians and under-served by government programs.
Present projects include:
A Winter Clothing Drive and School Supplies Round-up with hundreds of pounds of good used winter clothes, blankets, shoes and boots being sent to reservations in the Dakotas and Western states. We initiated an elementary school project to encourage children to help kids in rez schools by the first graders collect crayons, second graders do a pencil drive, etc.
We are working on hosting a "camp within a camp" to offer a summer camping experience to children with a rare, genetic birth defect, Prader-Willi Syndrome, at a facility near Ft. Davis, Tx in the summer of 2000. Donations will afford needy families, with a member who has this challenge, to send their child to camp.
Production of a 30-sec. T.V. public service announcement has been donated, which will help identify the OTHER 1,300 people in Texas who have Prader-Willi Syndrome. This will be distributed to all CBS affiliates in the state and made available to groups who want copies, in other states. Next spring, we will videotape a "Round Table Discussion" on what it means to live with and be a parent of a person with PWS and we will produce a videotape on the Trans-Pecos Renewal Center and our projects, to be used in fund-raising.
We are setting up a toll-free "helpline" for people who need more information on Prader-Willi Syndrome in the state of Texas, assistance with genetic testing, support, etc.
An extensive website has been created at www.tprc.freeservers.com, and literature (brochures, newsletter and even a book) have been printed, about our projects.
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