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The Histiocytosis Association of America was established in 1986 to act as the catalyst in connecting patients and families dealing with the effects of histiocytic disorders. Today, in addition to continued outreach and educational efforts, the Association funds clinical trials and scientific research projects with the aim of identifying better treatments and, ultimately, a cure for these rare diseases.
The Histiocytosis Association of America provides a variety of educational programs and emotional support services for those dealing with the effects of histiocytic disorders. The Association seeks to provide assistance to its members, patients and families dealing with histiocytic disorders through:
- Educational literature
- Awareness and fundraising events
- Educational and support meetings
- Online virtual community
- Patient and family advocacy
- Physician referral network
- Local and natioanl resource directories
- Kathy Wisniewski
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