• ORGANIZATION PROFILE
  • CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness sand Support CHERUBS - The Association of Congenital Diaphragmatic Hernia...

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(35.94382,-78.50478)
 

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Mission Statement

CHERUBS helps families of children born with Congenital Diaphragmatic Hernia (CDH). CDH is a rare and often deadly birth defect that affects 1600 babies each year in the U.S. We work to supply support and information to families, raise awareness of Congenital Diaphragmatic Hernia and to search for the cause, best treatments and prevention of CDH.

Description

CHERUBS was founded in 1995 to support families of children born with Congenital Diaphragmatic Hernia (CDH) and to research possible causes and better treatments for CDH. Currently, CHERUBS is the world's largest CDH organization, with over 2500 members in 37 countries and all 50 states; including parents, grandparents, foster parents, pediatric surgeons, genetic counselors, pediatricians, nurses, ECMO directors, respiratory therapists, and epidemiologists. CDH is a devastating birth defect, affecting 1 in every 2500 babies. CHERUBS is an IRS approved 501(c)III non-profit organization located in North Carolina. Membership for parents is free and our organization is run solely by volunteers and funded through donations from members and the public. CHERUBS has been offering support and information to families affected by CDH since 1995, raising awareness since 1995 and conducting research surveys since 1997. We have worked tirelessly to help the CDH community and to lead the support and education of parents dealing with Congenital Diaphragmatic Hernia. CHERUBS has advocated for research of CDH by promoting awareness and searching for the cause, prevention and best treatment of Congenital Diaphragmatic Hernia.

Website

http://www.cdhsupport.org

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