• ORGANIZATION PROFILE
  • Alport Syndrome Foundation, Inc. Alport Syndrome Foundation, Inc.

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Mission Statement

The Alport Syndrome Foundation's mission is to educate and support patients and their families that have been affected by this genetic kidney disease and to fund research to find more effective treatment protocols and a cure.

Description

The Alport Syndrome Foundation is a volunteer-led organization formed by families affected by this genetic kidney disease. Our goals are to provide communication and support for affected patients and their families worldwide; to build collaboration among patients, clinicians, researchers and other medical resources and to accumulate and direct financial resources to support research to cure Alport Syndrome. We seek to empower patients and their families through education and support. Our website Forum provides a platform for the Alport Syndrome Community to interact.

Website

http://www.alportsyndrome.org

Contact

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