• ORGANIZATION PROFILE
  • Alport Syndrome Foundation, Inc. Alport Syndrome Foundation, Inc.

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Mission Statement

The Alport Syndrome Foundation's mission is to improve the lives of those affected by this rare genetic kidney disease through education, empowerment, advocacy, and research to find more effective treatments and a cure.

Description

ASF is the leading independent non-profit organization in the United States serving and giving a voice to the Alport Syndrome community.

Alport Syndrome is a rare genetic kidney disease that causes kidney failure, hearing loss and vision problems. Fifty percent (50%) of boys with the predominant form of the disease will experience kidney failure by age 25 and 90% by age 40, most often preceded by hearing loss. Girls are affected too, with some impacted similarly to boys, but most having a later disease progression.

Website

http://www.alportsyndrome.org

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