• ORGANIZATION PROFILE
  • HUNTINGTONS DISEASE SOCIETY OF AMERICA INC HUNTINGTONS DISEASE SOCIETY OF AMERICA INC

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(40.75318,-73.993225)
 

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Mission Statement

HELP FOR TODAY. HOPE FOR TOMORROW The Huntington's Disease Society of America is a National, voluntary health organization dedicated to improving the lives of people with Huntington's disease and their families. To promote and support research and medical efforts to eradicate Huntington's Disease. To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington's disease.

Description

We are a national non-profit voluntary health agency dedicated to finding a cure for Huntington's disease (HD). We provide vital support, information and educational services to improve the lives of those affected by HD. We promote and support research to find a cure for HD. We offer resources and guidance for HD families through our national network of volunteer-based chapters and affiliates as well as through our HDSA Centers of Excellence for Family Services that provide specialized HD healthcare across the United States.

Huntington's disease is a fatal, degenerative brain disorder that currently has no cure and only one treatment for a symptom of HD. As HD slowly diminishes one's ability to think, eat, talk, walk and reason, they become entirely dependent upon others for their care. Eventually the weakened individual succumbs to death from pneumonia, heart failure or other complications.

HD is hereditary and profoundly affects the lives of entire families for generations -- emotionally, socially and economically.

Because of the uniqueness of the HD gene, research into a cure for HD is vital to advancing breakthroughs in treatments and cures for ALL neurodegenerative diseases such as MS, Alzheimer's and Parkinson's.

Please help: volunteer at an HDSA fundraising event, join a volunteer event committee, organize an HDSA fundraising event in your community, donate, tell three people you know about HD and what they can do to help.

Thank you.

Website

http://www.hdsa.org

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