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Ehrick Garion's Act is an awareness act created to advocate for people with Chiari Malformation and their families. We are a strictly volunteer-based non-profit organization - 501 (c)(3). We are focused on educating the medical community, the government, and the public on the different impacts of having a brain herniation of this type. For infants and children, there is a need to have pediatricians well versed in this condition, for research has shown that Chiari Malformation may be a cause of SIDS (Sudden Infant Death Syndrome) and fatal sleep apnea. For adults, there is also a need to educate government social service agencies, on how crippling this invisible condition can become and to change the methods used to identify Chiari Malformation by radiologists and doctors from arbitrary standards developed last century to national standards based on current sound medical research.
Ehrick Garion's Act is an awareness act created to advocate for people with Chiari Malformation and their families.
- Kolya Lynne Smith
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