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Since 1955, the mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control CF and to improve the quality of life for those with the disease. The CF Foundation tirelessly pursues this mission by supporting innovative research dedicated to discovering and developing new therapeis and by funding and accrediting specialized care centers to treat those people with the disease.
Locally, Children's Mercy Hospital and The Kansas University Medical Center house 2 of the 117 care centers nationwide that the Cystic Fibrosis Foundation supports. Each care center provides specialized medical care for those with Cystic Fibrosis, and conducts medical research to find improved therapies and a cure for this fatal genetic disease affecting the lungs and digestive organs.
Cystic Fibrosis is a life-threating genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States (70,000 worldwide). One in 31 Americans (more than 10 million) is an unknowing, symptomless carrier of the defective CF gene. CF occurs in one of every 3,500 births of all Americans and about 1,000 new cases of CF are diagnosed each year. CF Significantly impairs respiratory and digestive functions, making the simple acts of eating and breathing a challenge. The median predicted age of survival is 37 years of age. There is no cure for Cystic Fibrosis at this time.