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Breath of Hope, Inc

Cause Area

  • Children & Youth
  • Health & Medicine
  • Women

Location

PO Box 6627Charlottesville, VA 22906 United States

Organization Information

Mission Statement

Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.

Description

Breath of Hope provides the latest information on the treatment and care of the congenital diaphragmatic hernia birth defect. Breath of Hope provides emotional support to parents who are expecting a baby with the congenital diaphragmatic hernia birth defect and will provide emotional support to the parents of surviving and non-surviving children. Breath of Hope currently provides an online email listserv through Yahoo! Groups. This open forum of parents and relatives provides an environment where parents no longer feel alone and where they meet other families that have survived the trials and tribulations of the congenital diaphragmatic hernia birth defect.

On July 31, 2007, the Board of Directors of Breath of Hope, Inc. launched the Congenital Diaphragmatic Hernia Awareness campaign. The Directors, members and family and friends and the general public wrote their respective governors and requested that March 31 be proclaimed as Congential Diaphragmatic Hernia Awareness Day. Thirty-one governors and dozens of city and couty mayors and the President of Mexico Proclaimed March 31, 2008 as Congenital Diaphragmatic Hernia Awareness Day.

Breath of Hope's goal is to unite all people affected by the congenital diaphragmatic hernia birth defect; there is one goal, to get the word out.

Breath of Hope strives to increas awareness to stimulate and encourage meritorious research. Breath of Hope members seek to have better knowledge of the cause of the congenital diaphragmatic hernia birth defect and its treatment.

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