• ORGANIZATION PROFILE
  • Scleroderma Foundation Scleroderma Foundation

Causes

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(42.564,-70.9881)
 

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Mission Statement

  • Support: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
  • Education: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
  • Research: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Description

The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends. We are nonprofit membership organization with IRS 501 (c) (3) status. The Foundation was formed January 1, 1998, by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Foundation. As of May 2008 the Foundation consists of 21 chapters and 175 support groups nationwide. Basic member dues is $25. Benefits and services include our quarterly magazine, the Scleroderma Voice and a toll-free number (800-722-HOPE (4673) patients, caregivers and friends can call for information and referral. Currently the Foundation budgets over $1 million per year for research funding - our single largest expense. Our National Celebrity Spokesman is Jason Alexander, the comedian/actor/director best known for his role as "george Costanza" on the Seinfeld TV show. The organization headquarters is located in Danvers, Massachusetts. For additional information please visit our Web site at www.scleroderma.org.

Website

http://www.scleroderma.org

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