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  • ORGANIZATION PROFILE
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  • Scleroderma Foundation Scleroderma Foundation

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Mission Statement

The Scleroderma Foundation's mission is threefold: Support, Education, and Research. To help patients and their families cope with scleroderma through mutual SUPPORT programs, peer counseling, physician referrals, and educational information. To promote public awareness and EDUCATION through patient and health professional seminars, literature, and publicity campaigns. To stimulate and support RESEARCH to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Description

The Scleroderma Foundation is the leading national organization for scleroderma support, education, and research. An IRS 501(c)(3) tax-exempt organization. the Foundation was formed January 1, 1998, by a merger of the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation. Currently, the Foundation consists of 20 chapters and 175 support groups nationwide. Individuals can become a member with an annual fee of $25, which provides a subscription to our quarterly magazine, Scleroderma Voice, and discounts to attend the Foundation's National Patient Education Conference. Currently the Foundation budgets over $1 million each year for scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation's national office is located in Danvers, Massachusetts. To access extensive information about scleroderma resources, and to learn how you can get involved as a volunteer and fundraiser, please visit www.scleroderma.org.

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