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All money raised will be donated to Team HopeFull: Fighting Prader-Willi Syndrome Together. Team HopeFull is a 501c3 non-profit organization (45-3125882) that donates money to various Prader-Willi Syndrome organizations as well as to provide grant opportunities for families living with Prader-Willi Syndrome.
Every day, approximately one child is born in the United States with Prader-Willi Syndrome. Though considered a rare disorder, it is the most common genetic cause of life-threatening obesity. The insatiable appetite children and adults with PWS feel is disruptive and dangerous, to the point where they cannot live independent lives . Currently there is no cure for Prader-Willi Syndrome. By funding research and support services we will help discover solutions, find treatments, and give our families the tools we desperately need!
We are excited to announce the first annual Family Fitness Fundraiser for Prader-Willi Syndrome , benefiting Team HopeFull. The mission of Team HopeFull is to fight the challenges of Prader-Willi Syndrome (PWS) by funding medical research and support services for families affected by this difficult syndrome. Proceeds from this event will be donated to the Foundation for Prader-Willi Research, the Prader-Willi Syndrome Association - NJ Chapter, and grant opportunities for PWS families.
- JEN VALENTINE
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