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The MDA National Task Force on Public Awareness is a voluntary advisory body of adults with neuromuscular disorders who are leaders in their communities. It was organized to promote
the goals and programs of the Association and to provide MDA with feedback relating to the needs of those it serves.
The Task Force's mission is to foster greater awareness of MDA's contributions to people with neuromuscular diseases as well as the Association's central role in assisting those it serves to live rewarding, productive lives, fully integrated into the mainstream of American society. It also advises the Association on matters of importance to people with disabilities such as medical care, insurance, independent living, personal assistance services and pertinent legislation
The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. The Association's programs are funded almost entirely by individual private contributions.
Included in the more than 40 neuromuscular diseases covered by MDA are nine forms of muscular dystrophy, amyotrophic lateral sclerosis (ALS, or Lou Gehrig's disease), myasthenia gravis, spinal muscular atrophy, Charcot-Marie-Tooth disease and others.
More than one million Americans are affected by neuromuscular diseases. About 250,000 have some form of muscular dystrophy
- Maryann Krug
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