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CURE ALS' mission is to raise funds for research to find a treatment and cure for ALS (Amyotrophic Lateral Sclerosis - Lou Gehrig's Disease) through raising awareness and increasing education about ALS and to raise funds to donate to organizations that provide care for those with ALS.
ALS, also known as Lou Gehrig's Disease or the Ice Bucket Challenge Disease, is a progressively paralyzing disease taking away the ability to: use hands and arms, walk, talk, drink, eat, and ultimately, to breathe. Typical survival is 2 to 5 years.There is no effective treatment or cure.
Every 90 minutes someone is diagnosed with ALS ... and someone loses their life to it. This means that at any one time the ALS population is around 35,000. Large pharmaceutical companies don't want to spend their research dollars for a disease with a population of this size. Research is done mainly at the acacemic and small pharmaceutical company size.
Grassroots funding efforts from organizations like CURE ALS is vital to helping find a treatment that will allow the ALS population to grow to a size that will grab the attention and research dollars of those large companies. And ... more importantly ... to allow those with ALS to live a longer life.
- Kathy Tavano
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