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The mission of the IWSA is to promote international knowledge and awareness of
WAGR syndrome and its complications and treatments, to stimulate research
and to reach out to those affected by WAGR syndrome in an effort to improve their lives
The International WAGR Syndrome Association is a network of families, health care professionals, educators and others who care for someone with WAGR syndrome.
Our members are located all over the world.
- provides information about WAGR syndrome
- supports and encourages individuals and families affected by this disorder
- promotes research and public awareness
The IWSA is a non-profit group, and is run entirely by volunteers. Membership is free. Funding comes from donations and grants.
- Annie Prusakiewicz
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