• ORGANIZATION PROFILE
  • Spina Bifida Foundation Spina Bifida Foundation

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Mission Statement

To prevent the occurrence of spina bifida, the most frequently occurring, permanently disabling birth defect through research and awareness and to enhance the lives of all affected.

Description

The Spina Bifida Foundation (SBF)is a foundation which supports the efforts of its affiliated non-profit entity, the Spina Bifida Association of America. The SBF was formed in 1998 to: 1) promote national awareness of spina bifida (a neural tube birth defect that occurs in 1 of 1,000 births in the US, that's more than the # of children born with cystic fibrosis, crebral palsy and muscular dystropy combined). Most kids born with spina bifida are paralyzed from birth and confined to a wheel chair their entire lives. They often have to endure more than 20 major surgeries during their first 10 years of life.2) to develop and implement a cohesive and comprehensive research agenda leading to a cure and leading to the reduction of increasingly difficult secondary conditions associated with spina bifida; and 3) to develop a world class on-line community (the SB Village) that will educate and integrate the affected SB community members empowering them to achieve their ultimate potential.

Website

http://www.sbaa.org

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