Spina Bifida Foundation

Description

The Spina Bifida Foundation (SBF)is a foundation which supports the efforts of its affiliated non-profit entity, the Spina Bifida Association of America. The SBF was formed in 1998 to: 1) promote national awareness of spina bifida (a neural tube birth defect that occurs in 1 of 1,000 births in the US, that's more than the # of children born with cystic fibrosis, crebral palsy and muscular dystropy combined). Most kids born with spina bifida are paralyzed from birth and confined to a wheel chair their entire lives. They often have to endure more than 20 major surgeries during their first 10 years of life.2) to develop and implement a cohesive and comprehensive research agenda leading to a cure and leading to the reduction of increasingly difficult secondary conditions associated with spina bifida; and 3) to develop a world class on-line community (the SB Village) that will educate and integrate the affected SB community members empowering them to achieve their ultimate potential.