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OUR VISION In the quest to create a world without ALS, our vision is to care for and support all people living with Lou Gehrig's Disease as we leave no stone unturned in our relentless search for a cure.
We will achieve our vision by upholding our commitment to be the:
- Preeminent organization and catalyst in directing, funding and promoting ALS research;
- Most comprehensive provider of care and support services to the ALS Community through our coordinated network of Chapters, Centers and clinics;
- Leading advocate and voice for the ALS Community;
- Recognized authority and most trusted source of information and education about ALS.
OUR MISSIONTo lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.
- People with ALS and their families come first in everything we do.
- Scientific credibility and innovation are the hallmarks of our research program.
- Integrity, honesty and ethical behavior guide all our endeavors.
- Champion the cause of people with ALS to raise awareness, understanding and support at every turn.
- Collaboration and partnership within our organization and with others who share our goals and values promote continued success in the fight against ALS.
- Mutual respect is the cornerstone for all our working relationships.
- Financial strength enables us to accomplish our goals.
- Commitment to excellence and professionalism are key tenets at all levels of our organization.
- Diversity of ideas, cultures, ethnicities and backgrounds strengthen our efforts.
The ALS Association New Mexico Chapter is the only not-for-profit organization dedicated solely to empowering people with Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's Disease to all of New Mexico, Southern Colorado and West Texas. Working together with the ALS Clinic at the University of New Mexico Hospital, one of 32 nationally certified centers by the ALS Association and the Southern New Mexico support group, we are able to provide people with ALS (PALS) and their families the ability to live fuller lives by providing them with compassionate service and support. PALS and their families come first in everything we do. ALS affects each person differently; therefore, the needs of each person living with ALS will differ. Listed below are some of the services we offer:
- Support groups, 3 in NM
- Responses to patient inquiries regarding ALS, services and available resources in the community
- Patient Services Staff
- Durable Equipment Loan Closet
- Augmentative communication program or referral
- Respite care program or referral
- Home visits to people living with ALS to provide education, equipment, assessment of non-medical needs, support to family/caregiver, referrals as appropriate
- Relationships with ALS Clinics/Centers/Neurologists/other disciplines that work with ALS patients to help coordinate information and care
- Community education on ALS (for patients, family members, caregivers, friends, medical community, other health care agencies/providers)
- Advocacy/patient rights
- Patient confidentiality
- Public and media communication regarding research and other ALS news
- Bereavement support services, end of life care and palliative care for patients, families and caregivers. Patients, family members and/or caregivers will never be turned away. If we cannot help them directly, we will do our best to find someone who can. When certain required services are not provided by the Chapter, Chapter staff is knowledgeable about local resources and prepared to make a referral(s) to other organizations that can provide the service.
- Kelly Howe
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