• ORGANIZATION PROFILE
  • Arizona Hemophilia Association Arizona Hemophilia Association

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(33.457733,-112.0805)
 

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Mission Statement

The Arizona Hemophilia Association is a volunteer-based non-profit that works to improve the quality of life of individuals and families affected by bleeding disorders by providing caring support, quality education and targeted advocacy aimed at enhancing medical care and insurance coverage for our community in the entire state of Arizona.

Description

The AHA has served families and individuals affected by bleeding disorders in Arizona since 1967, providing bilingual and bicultural services and programs. We are the only such organization in the state of Arizona. Bleeding disorders are life-threatening, debilitating, and expensive to treat with many physical, emotional and social challenges. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. We focus on treating the total person (and the entire family), with programs to provide emotional support, educational programs to provide more knowledge about insurance and treatment, and youth programs to promote the importance of quality education that lead to careers that provide good insurance. We are increasing awareness about bleeding disorders so that patients are diagnosed sooner, treated sooner, and become a part of our community sooner so that we can enhance their quality of life. In order to continue effectively serve our entire bleeding disorder community, we need financial resources, board commitment and participation, volunteer recruitment and involvement, increased communication with health providers, increased public awareness and a strong strategic direction and focus. Without that support, children may not get the treatment and support they need which can lead to greater risk of complications and permanent, debilitating injury. Please join us in helping make a difference in their lives so that they can lead a long, productive, and healthy life.

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