• ORGANIZATION PROFILE
  • Arizona Hemophilia Association Arizona Hemophilia Association

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(33.4875,-112.063)
 

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Mission Statement

The Hemophilia Association is dedicated to enhancing the quality of life in the hemophilia community by providing programs and services that provide emotional, financial and educational assistance and support. We advocate and create awareness to promote and protect access to healthcare for the bleeding disorder community. We bring together individuals and families to promote the sharing of experiences and information.

Description

The Arizona Hemophilia Associaton was established in 1967. We strive to enhance the quality of life for people with bleeding disorders through education, awarness and social service. Hemophilia is a rare inherited bleeding disorder in which the blood does not clot normally. About 18,000 people in the US have hemophilia. We service appoximately 800 individuals and families with bleeding disorders in Arizona. What we do: We educate the community and the general public, we ensure quality treatment of the total person/family, we advocate for the bleeding disorder community, we ensure medical treatment/therapy access and much more. We put on a great camp every summer called Camp HONOR (Hemophiliacs Overcoming New Obstacles Resourcefully) for 8-17 year olds and siblings with a bleeding disorder or HIV. Because the Arizona Hemophilia Association is a non-profit organization, we rely solely on donations and fundraising events to finance our programs and services. We host several fund raising events each year; a salsa challenge, golf tournament, poinsetta sale and 5K fun walk.

Website

http://www.hemophiliaz.org

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