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We seek to serve persons with Angioedema resulting from C1 Inhibitor deficiency and their families by (1) increasing overall awareness of the disease, and (2) providing patients and physicians with authoritative and readily accessible information on diagnosing and treating the ailment. The Association also serves as a support network for patients and their families, as well as an agency for research seeking effective therapies and an ultimate cure.
We are a non-profit patient advocacy organization dedicated to expediting US approval of safer and more effective HAE therapies. In addition, we provide a wide range of services that include clinical trial placement, physician referrals, education, and individualized patient case management.
- Janet Long
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