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The organization is dedicated to volunteer service of persons with hemophilia , von Willebrand disease (vWD) and other genetic bleeding disorders. The organization provides services and referrals to members of the community and encourages them to advocate for their own health care. Furthermore, the organization supports research and programs that will improve the quality of life for persons afflicted with genetic bleeding disorders and their associated complications.
To achieve the aforementioned, the organization is committed to:
Providing encouragement and assistance in the treatment and medical care of affected persons.
Assisting consumers and their family by providing programs regarding:
Peer-led education, outreach and support targeting consumers (patients), parents of affected children and the general public;
Advocacy and personal development; and Recreation.
Fundraising in support of organizational objectives.
Supporting research efforts.
The organization shall establish and maintain cooperative working relationships with all participants of the bleeding disorders health care model including, but not limited to, consumers and their families, health care providers and professionals, industry, advocacy groups, insurance providers, summer camp personnel and the National Hemophilia Foundation (NHF) as well as the New York State Department of Health and federal health agencies within the Department of Health and Human Services (Public Health Service, Centers for Disease Control and Prevention, Food and Drug Administration and National Institutes of Health) to improve the quality of life for individuals with bleeding disorders and their families.
The organization adopts the motto "A cure in our time".
Established in 1968 as the Upper Hudson Valley Chapter - National Hemophilia Foundation, Inc., the organization provides services and referrals to members of the community (and their families) and encourages them to advocate for their own health care. Furthermore, the organization provides programs that will improve the quality of life for persons afflicted with genetic bleeding disorders and their associated complications. BDANENY currently serves 22 counties of New York State. The territory extends from Ulster and Duchess counties east to the Green Mountains, west to Oneida County and north to the American/Canadian border. The Association is comprised of dedicated volunteers including patients, family members of patients, and health care professionals.
Big changes happened in February of 2010, when BDANENY opened the doors to our first office, and later that year hired our first employee. Pictured to the left Board Members and members cut the ribbon to our new office with the help of Rensselaer County Executive, Kathy Jimino.
The Association endeavors to meet the diverse needs of a geographically dispersed community through a variety of programs, including:
Education, Outreach & Support
S cholarship s
Recreational Community Activities
- Christina Mastrianni
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