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National Neurfibromatosis Foundation National Neurfibromatosis Foundation
Cause Area
Location
Causes
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Mission Statement
- To sponsor scientific research aimed at finding treatments and a cure for NF1 and NF2- To promote the development of clinical activities, which assure individuals with NF ready access to the highest caliber of medical care.- to develop programs that will increase public awareness of NF- To provide support services for patients adn families witha ccurate and comprhensive information about NF, with support group activities and referrals to qualified physicians and healthcare professionals.
Description
Our organization is dedicated to providing support, information and guidance to families and individuals with NF while educating and acting as a resource for the medical and lay communities, and supporting research.
Website
Contact
- Melanie Ferengul
- (800) 323-7938
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