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Our goal is to increase visibility of Spinal Muscular Atrophy, help raise funds for research and help families affected by this physically, emotionally, and financially taxing disease. We dream one day there will be a world where SMA does not rob babies of their futures.
The Live RhysStrong Foundation was founded in memory of Rhys Anthony Santiago, who was diagnosed with Spinal Muscular Atrophy (SMA) when he was just 5 weeks old. The Live RhysStrong foundation took flight the same day Rhys grew his angel wings--August 26, 2013.
In his 55 days he inspired others to help in any way they can, and his inspiration continues to burn bright. We are a 100% volunteer-organization currently entirely funded by donations.
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