• ORGANIZATION PROFILE
  • Epidermolysis Bullosa Medical Research Foundation Epidermolysis Bullosa Medical Research Foundation

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(34.0595,-118.386)
 

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Mission Statement

The mission of the EB Medical Research Foundation (EBMRF) is to relieve the suffering of EB children by providing funds for medical research with the goal towards funding a cure. The Foundation is committed to keeping expenses at less than 1% of incoming donations so that a full 99% of contributions can go directly to the research program. The EBMRF is unique in that the Foundation pays no salaries.

We work directly with scientists at Stanford University School of Medicine's Dermatology Department.

Description

Epidermolysis Bullosa (EB), is a group of diseases characterized by blister formation after minor trauma to the skin. This family of disorders, mostly inherited, range in severity from mild to the severly disabling and life-threatening diseases of the skin.

This is a rare genetic skin disorder that affects all ethnic and racial groups. It is not contagious.

Please refer to our web site under Research Update for the latest information on what is being done to help those with EB.

Website

http://www.ebkids.org

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